Forum Replies Created

  • John Baldino

    Member
    June 4, 2023 at 10:09 am in reply to: Sodium Pyruvate

    hi john, I am looking into this as well. you having any luck?

    • John Baldino

      Member
      June 4, 2023 at 10:18 am in reply to: Sodium Pyruvate

      I purchased liquid form and powder form and I should get them this week. I have a nebulizer and I have a box of saline vials. I will add it to the saline and give it a try.
      Anything is better then nothing. Starting out with small amount at first once a day.

  • John Baldino

    Member
    February 28, 2022 at 8:31 am in reply to: Nifuroxazide Antibiotic Found to Stop, Reverse Induced PF in Mice

    wow, great news. I would like to be in on clinical trials since I am out of options. Thank you

  • John Baldino

    Member
    August 17, 2023 at 2:27 pm in reply to: Lung Transplant

    I am a 73yo man and suffer from IPF. I am on oxygen 24/7. Everything I read makes me believe that a successful transplant will add 3 years or more to your life is the exception rather then the rule. Your quality of like is very diminished. You need to live close to where you have it done up to 6 mos afterward for proper monitoring. If you had a procedure called pleurodesis (talcing) done on your lungs, like I did, it makes transplant very risky because the lung has to be removed in pieces and involves lots of bleeding.

    I am content with the way I am and hopefully they will find something that stops and reverses fibrosis. Lots of promising clinical trials going on. I just hope I hang on.

    I’m in God’s hands.

     

     
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  • John Baldino

    Member
    June 12, 2023 at 8:51 am in reply to: Sodium Pyruvate

    I, too, take a handful of supplements every day. I’ll do whatever I can to improve my breathing.

  • John Baldino

    Member
    May 31, 2023 at 12:54 pm in reply to: N115 nasal spray

    any more info on this product?

  • John Baldino

    Member
    April 28, 2023 at 9:32 am in reply to: Serrapeptase and nattokinase and Ofev
  • John Baldino

    Member
    April 11, 2023 at 5:09 pm in reply to: Shortness of breath and how to catch it

    Frank, turn your oxygen up to 4 or 5 and put cannula in your mouth. I have the same issue at times and this trick always works for me. I, too, am a mouth breather. Good luck