Here is routine used at the Breathing Center.

Start off by doing 15 minutes on a hand bike while sitting down. The take you BP and Ox at the beginning and the end.

Next do group stretches and breathing exercises. Each is done for 5 reps. The basic breathing exercises are as follows. Arms thrust out – lock your hands together, hold your hands…

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I was diagnosed 5 years ago. I signed up for a Medicare approved breathing class — 75 minutes twice a week for 22 weeks. Wow was I in for a surprise. At 76 I was still working out a gym and thought I was in good shape. I found out my lungs were in pretty bad shape. The breathing exercises were so effective that I signed up for the…

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I think there was a study about 4-6 years ago regarding using stem cells to try to improve IPF patients. If I remember correctly the study showed that stem cell therapy was ineffective against IPF. I think the American Lung Association put out a bulletin saying essentially while stem cell therapy is interesting IPF patients would be…

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I was diagnosed with IPI in March of 2022. Immediately started taking OFEV, 150 mx 2xd. I had had several years of breathing trouble and bad lung infections. I have a fear of using Ox and an aversion to breathing machines. I am 81, still very active, and consider myself stable — primarily because of pulmonary rehabilitation

Shortly after…

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I was diagnosed with IPF in early 2022 and started OFEV in April of 2022. Overall I am pretty stable. Years ago I used to smoke marijuana occasionally – love the mellow feeling; however, with my lung disease I will not smoke or vape anything. About twice a week I will eat 5mg of gummy bear (delta 9) about 2 hours before bedtime. You do not…

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I have been on OFEV 300mg daily for 3 years. No matter what I do about once every 7 days I have a stomach explosion. I have tried using Imodium, but have to watch it because I can quickly become constipated. I have tried the cinnamon raisin bread. I finally realized what was happening was the OFEV creates a tremendous amount of gas; that…

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I was diagnosed with IPF in March of 2022 and immediately started taking OFED. In June of 2024 I participated in a on year double blind study for Tyvaso. The idea is Tyvaso may help regenerate healthy tissue. The study was a non event — you breath thru the machine 4 times a day. Of course since it was a double blind study I do not know if…

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I have been on OFEV 150mg x 2d since summer of 2022. Lot of GI issues. Over time and with much experimenting I was able to control the GI issues by taking 1/2 of a 2mg loperamide HCL tablet about 30 minutes before eating and taking the OFEV. About 2 months ago the loperamide started causing severe constipation; increasing my fiber intake…

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I have been taking OFEV for about 2 years. Here is what I have found that works for me.

1. Do not take OFEV without taking Imodium. Best to take Imodium combined with Simethicone. Available at Walgreens. The amount you take depends upon your system and what else is going on in your life. I generally take a half of a table at the time I…

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I WAS DIAGNOSED WITH IPF IN LATE 2021. STARTED ON OFEV IN APRIL 2022.

I WAS NOT SATISFIED WITH MY DOCTOR SO IN APRIL 2024 I SWITCHED TO A RESEARCH PULMONOLGIST. HIS ASSESSMENT IS THAT I MAY HAVE IPF OR PULMONARY HYPERTENSION — THAT IT IS TOO EARLY TO TELL. HE IS CONDUCTING A DOUBLE BLIND RESEARCH STUDY USING A TYVASOL VAPORIZER TO…

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I have been of OFEV for 2 years. I have found that stomach problems change about every 6 months. I have developed a routine that works for me.

About 30 minutes before I take OFEV I take either 1/2 or 1 Imodium, depending how I am doing. Of course this is constipating, so most mornings I have a small bowl of oatmeal.

I also always have 2…

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Does anyone know anyone in Houston that is doing laser therapy?

I am interested in inquiring of a treating doctor or chiropractor who does this.

I find the comments about Laser treatment for IPF very interesting.

Does anyone know who is doing Laser treatments in Houston for IPF?

I was diagnosed with IPF in March 2022. I immediately enrolled in a breathing rehabilitation program. It has helped a lot. The bottom line is it improves the efficiency of your healthy lung tissue. It also improves your general physical well being. And finally it focus you on the importance of taking care of yourself.

I suffered from excess mucus and phlegm my entire like. Was taking Mucinex 1200 mg two times a day. Then I was diagnosed with IPF and put on OFEV. The OFEV has eliminated my mucus problem.

I know how you feel.  Your story is very similar to mine.  I developed bronchitis in October of 2021 that took 3 rounds of antibiotics to clear.  Further more they put me on a breathing machine using albuterol; my daughter who is a pediatrician, was with me one day when I took a breathing treatment; at the end she noticed I was still wheezing… Read more

Last March I was diagnosed with IPF and put on OFEV 150×2.  We had 2 European trips that had been postponed due to Covid and rescheduled to July and August in 2022.  At the time I was 77.  What I did when I started taking OFEV is to take 1 Imodium, initially when I took the medicine, and after about a month 30 minutes before I took OFEV.… Read more

Covid overwhelmed the medical profession, especially pulmonologist.

Look up “pursed breathing.”  It is a technique that reduces anxiety and rapid, shallow breathing

.  In breathing classes they teach you to breath in thru your nose and to exhale thru you mouth –and when you exhale you close your lips except for a small opening and exhale 4… Read more

Without addressing the specific issue raised here, but addressing pulmonary rehab I strongly recommend anyone diagnosed with any type of breathing problem do an in service breathing or pulmonary rehab program.  I was diagnosed with IPF in March of 2022 and started a rehab program in April; while I finished the program I signed up and am… Read more

I have suffered from excess mucus in the lungs for about 50 years, with difficulty in clearing my lungs.  About 20 years ago I discovered that if I take Mucinex 1200 extended tablets in the morning and evening the mucus would thin out enough so I could keep my lungs clear.

Las March I was diagnosed with IPF and put on Ofev, 150 mg, morning… Read more

I took two trips to Europe this last summer while on Ofev.  Here is what I did.

Every time I took Ofev I took a half of an imodium.

Then I carried in my pocket at all times 2 imodium tables, 6 125mg of Gasx, and 3 baby wipes.  Once or twice I had to use the Gas and an imodium tablet.  I would also head to the restroom at the very first sign… Read more

Immediately sign your father up for a pulmonary physical therapy program.  Medicare and most insurance companies will pay for it.  The one I just completed was 45 session; I usually did 2 sessions a week – Tuesday and Thursday.

I was in pretty good shape when I started and much better shape after I competed.  However, I was amazed at the… Read more

I would love to join in a Zoom conference.  My email is jgrubb@grubblegal.com.  My phone number is 713-702-1808.

I live in Houston and even though we have the largest medical center in the world here and both University of Texas Medical School and Baylor College of Medicine are rated as Centers of Excellence, I would rate the care for IPF much… Read more

Saw my pulmonologist today for 6 month visit after being diagnosed.

I mentioned to her that I had joined some groups with IPF and there was some exciting research out of Cedars Siani regarding zinc.  Her response was I must of read it on Google.  I responded no I had read the research report done by Drs. Paul Noble and  Carol Liang and in… Read more

Very interesting.  This article offers some hope if one takes zinc.  So I will go and get some zinc this afternoon.

Another one to follow is the antibiotic Ambatrol (this is the trade name, not the generic).  Some researchers have found in mice taking the generic of Ambatrol results in a reversal of IPF.  This is an antibiotic  that is used to… Read more

From what I can tell this is prescribed in the US under the trade name of Ambatrol.  The standard prescription if 4 times a day for 7 days.

Is anyone going to ask their Dr. for a prescription for this?

I think I will do so — targeting to finish taking it 4 to 12 weeks before my next scheduled cat scan.

Many medical solutions are… Read more

Google Breathing Center Rhode Island and you will find the programs.

I have been attending a rehab program two ties a week for a month and all my numbers have improved.