Kathleen Greco
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Just want to say Hi to everyone and thank you Mark & others ,you have no idea how much you have helped me
just with your kind words. I am a therapist but always had issues asking for help or myself or sharing my pain with others…….so thank you…thank you…I must get back to this group again & take time to write.
Kathleen Greco
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Hi,
I had first & only one in Oct.of 2020 & was not on oxygen until then,now I am on it 24/7 & don’t see me getting off of it.
It’s a very high dose 8 at excertion & up to 15 for long walks & so on. My mood has been good since I have had this but after that hospital stay in Oct.been very sad. But I will keep praying for all of us. Just recently feeling kinda sick again & my numbers dropping……..I just do not know what to do ..had this for 5-6 yrs now.I wish all of you the very best.
Kathleen
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thank you so much for responding to my mail. Sorry to say not feeling much better & this is not like me I think that’s why all the worry around me…sometimes I think & this all is for what ?? maybe 6 months? I am so sorry to say this to all those awesome people out there struggling everyday…..bless each & every one of you .Katlheen.
also as a therapist should have learned something after 50 years.everyone who comes to this site is so very awesome.
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Hello, I was so dispointed & surprised how much it affected me.(I wrote before) for almost 6 yrs .I did great but I really worked hard for it,but then in Oct. had an exacerbation & was hospitalized & told I would now have to be on Oxygen all the time and a high amount 8 resting 15 assertion but never used the 15 so far. I am really down about thid more than I thought….. also a therapist & should have know.has anyone been on that high of Oxygen..I do not feel bad. Everyone take care of yourselves. kathleen
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Thank You very much….@steve-dragoo & others who contributed to giving me info & sites that may or may not be useful for the medication, Metformin but at least enough info to get a handle on what’s going on with it.
Thank you for your time& information. Kathleen Greco
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Hello,
I like to know more about the drug Metformin & wonder is it beneficial or is it not? reading the comments one can not tell..2 people said it was & 1 said it was useless pretty much.
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@thom, I have a hernia also & it’s very hindering to me, it’s very large & now wonder if it has something to do with IP also same thing with me … it’s hard to be really comfortable but I have a great Dr’s. & hospitals too.
I have checked also about the sweating as I do have issues with that..ok I’ll write more later
sta
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I didn’t realize that the humidity could do that & make one feel like something awful..I even went to urgent care.
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Yes, I have heard of pineapple long ago for mucus & by a couple of Doctors also . I know people who use it drink it…eat it during allergy season. I myself can eat a half in the afternoon than the other half in the evening.
It is really a wonder food for mucus. I have to find the info on it again & why & how it helps.
I asked before does anyone have stomach bloating or extension from either IPF or meds for it?? please answer as I put this question out there many times. My stomach is huge & Dr. even did a scan to see if anything would show up to cause this, had ultrasound too.
Thanks, Kathleen (Snookie)
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could someone tell me if this number morc RNA phone number is MORC RNA 1 586-273-2216 is related to this report I keep getting calls from this number & when I looked it up it had something to do with what (I think) you are talking about. monARC BioNetworksIt’s important yet cannot find info on it maybe someone out there knows something about this.thank you kathleen greco
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Winter can be scary for ppl with lung issues but also don’t dwell on it or it will become the season from hell.Go for walks (just cover mouth with scarf or face mask…gloves…hat & enjoy the clean brisk air…winter can get you out of a place that a lot of germs are confined in….long ago these nurses at hospital said they wish they could open all windows & air out place ..get rid of some germs !! If you intend to shop during winter & are in a place where they have hand rails wear gloves & wash on return home…washing hands anywhere there are a lot of people or hand rails always wash hands..carry soap in little bottle with you …Also great idea use poles from cross country ski’s to push you a little or just to help with balance in slippery area & also not make you so breathless or tired..They work great..Enjoy those beautiful chilly nights with light snow on ground…so refreshing….