Forum Replies Created

  • kathy-phillips

    Member
    March 5, 2020 at 4:44 pm in reply to: fits of cough

    @Wendy-dirks , My husbands cough also gets worse when he lays down.  That is the only time use uses oxygen.  He’s wondering if there is some relation.  He does cough during the day but at night it’s more from his throat than lungs.  He stopped by the O2 place today and they are coming to check the air filter on the machine.  Typically they change it every 6 months or so and we just realized it had not been changed in a year or more.

    @Susanhowitt, since you use the same oils as my husband, do you diffuse as well?  Have you tried RC for the cough or the cough drops mentioned?    Breathe Again is another amazing blend to help loosen up the lungs.  I’ve never read an article about peppermint being bad for the lungs, may I ask where you read this or in what context?  Always looking to learn more.

    Toby does not want to take a prescription if possible.  I see all the comments about “Gaba” working but he’s not to the point he wants to go that route.  We are seeing so much improvement in his overall health doing the alternatives that he feels confident it will work rather than the prescription.  but if there comes a time that is needed he will do is necessary.

    @Charlene thank you for the link……ipfcough.com !

  • kathy-phillips

    Member
    March 3, 2020 at 5:38 pm in reply to: So upset

    I’m so sorry you had this awful experience.  I personally will wear a mask in crowded places because I don’t want to get something and bring it home to Toby – he’s the one with IPF.  I even “nicely” comment to adults who cough and sneeze without covering their mouth or using their elbow.  I asked one 40 ish year old woman if she would please cover her mouth when coughing because so many germs are spread that way and there are so many people with weakened immune systems like chemo, lung disease or even tiny babies.  Her reply “OH I FORGOT”…………….I cover my mouth in my own home.

    The panic is awful.  The ignorance is worse.  I know you feel hurt and pissed too but don’t let that one bad person get to you another minute.  BIG BIG HUGS from Virginia……………

  • kathy-phillips

    Member
    March 3, 2020 at 5:29 pm in reply to: fits of cough

    What helps my husband is Thieves Cough drops.  I break them up and put pieces in a jar for him.  No other cough drops works like these.  I also have a blend for our diffuser with Eucalyptus Globuhis, Wintergreen and peppermint.  He carries a bottle of RC oil with him every where.  He rubs that on his chest / throat area when he gets a coughing fit.

    I think his cough has gotten worse the past few days but he was doing a little wood working for me and I think that saw dust, even with a mask, triggered that tickle.

    But we are reading on this thread and PatientsLikeMe on the IPF forum that many are having issues with cough now more so than a few months ago.    We also boost the immune system daily.

    Possibly a saline rinse would help but he won’t do that – chicken.  But a nettie pot or the Saline Nasal rinse kit from Amazon would help, it sure helps me when I get clogged up.

    Boost those immune systems!!!

  • kathy-phillips

    Member
    January 21, 2020 at 5:55 pm in reply to: Boosting the immune system

    Yep Toby has hiatal hernia !  Good call.  He eats a main meal during the day and snacks for dinner

     

  • kathy-phillips

    Member
    January 21, 2020 at 5:30 pm in reply to: Boosting the immune system

    Susan can you share your neighbor?   Are you using toxin free cleaning products?  That is the first thing we tossed out of the house after getting his diagnosis.  NO cleaners with fragrance / chlorine !   Even our detergent is 100% natural so we aren’t sleeping on toxic sheets and wearing the clothes that formerly smelled great……….’fragrance’ is very dangerous for our lungs.

    Toby had trouble with anything that requires bending down / decreasing lung expansion.  Even eating to much causes problems.

    I agree you need to be as active as possible even forcing yourself to do things.  It’s hard during winter even for me but it’s been great for Toby to be in pulmonary rehab 3 days a week.  Keeps that 02 and heart rate going.    Hugs for a great day everyone, Kathy & Toby