Pulmonary Fibrosis News Forums | Kristina grilo | Activity https://pulmonaryfibrosisnews.com/forums/members/kristina/activity/ Activity feed for Kristina grilo. Sat, 04 Apr 2026 22:03:26 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 88493871df1729b72a375967fbe6de58 Kristina grilo posted an update: @charlene-marshall does anyone know how Steve Dragoon […] https://pulmonaryfibrosisnews.com/forums/activity/p/26777/ Wed, 21 Apr 2021 13:37:46 -0500 @charlene-marshall does anyone know how Steve Dragoon is doing? I haven’t seen any posts from him for months, hope he’s ok

]]> 1 c6f4a9889d72bea4e1bc20b7828f9b06 Kristina grilo replied to the discussion Olfactory changes with IPF in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/olfactory-changes-with-ipf/#post-28123 Wed, 21 Apr 2021 13:35:05 -0500 Reply to Olfactory changes with IPF

If any of you have pets, be careful diffusing essential oils, some of them are lethal to our pets

]]> ef55be678904ef0714c204c54f5993e0 Kristina grilo posted an update: @steve-dragoo Hi Steve.....I was reading your reply […] https://pulmonaryfibrosisnews.com/forums/activity/p/21636/ Mon, 03 Aug 2020 20:11:17 -0500 @steve-dragoo Hi Steve…..I was reading your reply to someone, not sure who now, but you said that you don’t have a need for oxygen while you’re in the Philippines, and that the meds were quite different there…. may I ask what you are taking over there? I continue with the laser and some over the counter supplements, but have to have… Read more

]]> 1 61765ea06164ef1f053eaec778469f45 Kristina grilo posted an update: @westds01 Thank you Robert, for answering my question […] https://pulmonaryfibrosisnews.com/forums/activity/p/21071/ Wed, 08 Jul 2020 17:15:48 -0500 @westds01
Thank you Robert, for answering my question about the type of antibiotic you’re taking. The reason I ask is because there are several studies done where antibiotics were used, specifically minocin, with great results. There’s a theory that the fibrosis is a result of bacteria build up. If you want, read the book by Henry… Read more

]]> 0 fb15109414133fc7538b436324435e46 Kristina grilo posted an update: @westds01 hey Robert, I'm wondering......is the […] https://pulmonaryfibrosisnews.com/forums/activity/p/21057/ Wed, 08 Jul 2020 00:05:36 -0500 @westds01 hey Robert, I’m wondering……is the antibiotic you’re on called Minocin?

]]> 1 606a826fceb3bda3ab562b1ddf482c68 Kristina grilo replied to the discussion Laser Treatment. Whats going on? in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/laser-trearment-whats-going-on-2/#post-23458 Mon, 16 Mar 2020 21:35:27 -0500 Reply to Laser Treatment. Whats going on?

I continue do do them twice a week and it’s keeping me stable. No drugs and just ocasional oxygen

]]> ddbf8013c0becd605ed13fde2a498c1f Kristina grilo replied to the discussion Port-a-Cath Use in Patients with Pulmonary Fibrosis in the forum Upcoming Medical Appointments: Q&As https://pulmonaryfibrosisnews.com/forums/forums/topic/port-a-cath-use-in-patients-with-pulmonary-fibrosis/#post-22347 Tue, 31 Dec 2019 14:25:04 -0600 Reply to Port-a-Cath Use in Patients with Pulmonary Fibrosis

How long will the surgery take?

]]> 3bc69ad7f7e86abea06076823c367bb9 Kristina grilo posted an update: @charlene-marshall I was wondering if you had heard […] https://pulmonaryfibrosisnews.com/forums/activity/p/16847/ Sun, 29 Dec 2019 17:11:04 -0600 @charlene-marshall I was wondering if you had heard from Steve Dragoon, I’m a little concerned about him being over in the Philippines what with the 2 hurricanes they just had over Christmas. Plus I haven’t seen anything posted from him in a couple of months

]]> 1 e282ce1be24aa590763a12f22eaeb884 Kristina grilo posted an update: @steve-dragoo , are you ok? I see you have not […] https://pulmonaryfibrosisnews.com/forums/activity/p/16843/ Sun, 29 Dec 2019 13:12:57 -0600 @steve-dragoo , are you ok? I see you have not posted anything for 2months, and you guys had 2 hurricanes over there so I’m a little concerned.

]]> 6 e4916d076b01e81e0911e4c259f669d5 Kristina grilo posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/15219/#acomment-15224 Sun, 15 Sep 2019 18:53:27 -0500 Thank you Dr. Hall

In reply to - Kristina grilo posted an update @drandyhall Good morning dr. Hall, I have a quick question about the laser. My doctor has used it by waving it back and forth over my skin, but John Sykes uses a different head […] ]]> f610ef7a319778d18e01da94d726420a Kristina grilo posted an update: @drandyhall Good morning dr. Hall, I have a quick […] https://pulmonaryfibrosisnews.com/forums/activity/p/15219/ Sun, 15 Sep 2019 13:19:31 -0500 @drandyhall Good morning dr. Hall, I have a quick question about the laser. My doctor has used it by waving it back and forth over my skin, but John Sykes uses a different head and his doctor rolls it over his lungs. Do you wave yours or roll it? Thank you

]]> 2 82a97041a22cb21370719ceaa4d8bcb5 Kristina grilo replied to the discussion Sodium Pyruvate in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/sodium-pyruvate/#post-21276 Fri, 13 Sep 2019 00:21:26 -0500 Reply to Sodium Pyruvate

I bought some on amazon, but it’s a powder. Now I have to purchase a nebulizer…..not sure if it’s going to work…also I’m a little afraid of trying it, so i have not bought the nebulizer…..yet..

]]> 177fac9af20310618286aae7dcb36055 Kristina grilo posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/15035/#acomment-15041 Thu, 05 Sep 2019 19:38:58 -0500 Thanks Denny…I’m a little skeptical, especially considering the $900 price tag….if they work it would be awesome, if not …..and I would have to take at least 3 months worth….I need to think more througly and unfortunately I can’t find anything on the internet about wei, which is a red flag for me, just their own referrals…

In reply to - Denny posted an update @kristina I took the WEI Lab herbs in July of 2017 when my breathing was going down significantly because I play hockey. I took them for 2 months in July after my diagnosis, one […] ]]> aa14b7eadb3e4bf3d5d6ba69063c97a0 Kristina grilo replied to the discussion Is this what depression feels like? in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/is-this-what-depression-feels-like/#post-20954 Thu, 22 Aug 2019 15:25:53 -0500 Reply to Is this what depression feels like?

I am so sorry….do you have a Bible you can read? I find that my faith really helps a lot when all seems lost. Please don’t give up, God loves you!

]]> 9e9d1461a5962d73848de7aac9af9a33 Kristina grilo posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/14628/#acomment-14636 Wed, 21 Aug 2019 22:45:10 -0500 Yes, I am very interested in taking the product. I know they’re expensive but our health is worth it. OK, let me know the results of your ct and then order this stuff. Thank you Dr. Hall

In reply to - Kristina grilo posted an update @drandyhall I hops things are good with you. I was hoping you could let me know if the Wei herbs are helping you at all. I asked the same from Steve Dagoo and he said that yes, […] ]]> 70c2acdb13e5da5b06946526608cd363 Kristina grilo posted an update: @caneelbay1 I'll go with you, lol..I'm not […] https://pulmonaryfibrosisnews.com/forums/activity/p/14629/ Wed, 21 Aug 2019 16:46:05 -0500 @caneelbay1 I’ll go with you, lol..I’m not joking though…I don’t think I have 2 or 3 years to wait for the medication to be approved here. I looked online to see if i could order it but so far no go. Also thinking about Steve Dagoo, he’s in the Philippines, maybe it would be easier for him to purchase it over there and mail it to us. I’m… Read more

]]> 0 57e07710af6b0c992a42e9f3c47d9eac Kristina grilo posted an update: @drandyhall I hops things are good with you. I was […] https://pulmonaryfibrosisnews.com/forums/activity/p/14628/ Wed, 21 Aug 2019 16:40:06 -0500 @drandyhall I hops things are good with you. I was hoping you could let me know if the Wei herbs are helping you at all. I asked the same from Steve Dagoo and he said that yes, they are helping him. I would also like to hear your opinion , please ! Thank you Dr. Hall

]]> 4 28504b94954755338f2a7e8571a30d0f Kristina grilo replied to the discussion Sodium Pyruvate in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/sodium-pyruvate/#post-20923 Tue, 20 Aug 2019 17:39:29 -0500 Reply to Sodium Pyruvate

Can we not order it online from a Chinese pharmacy? I’m going to see if I can…

]]> b0b2a4dd65d646e95cc449ef52e4a63a Kristina grilo posted an update: @steve-dragoo How have you been? You haven't posted in […] https://pulmonaryfibrosisnews.com/forums/activity/p/14557/ Sun, 18 Aug 2019 15:59:37 -0500 @steve-dragoo
How have you been? You haven’t posted in a while, I hope things are good with you. Are the wei herbs helping you while you’re over there in the Philippines? Hope to hear from you soon….

]]> 1 6a1dc53db6ffb4c7a7851c383cc666ca Kristina grilo started the discussion Starting esbriet in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-esbriet-2/ Fri, 09 Aug 2019 03:19:48 -0500 Starting esbriet

My lung function is at 61% and my DLCO is 54. I have lung nodules and my pulmonologist wants 2 ct’s done with contrast….one to check for cancer and another for blood clots…..the tests differ from each other, that’s why he wants 2. I’m not on oxygen, yet, and he wants me to start on esbriet….I have no questions, just want to… Read more

]]> 6bab73495b43b91b01a8ebc1599cd8f5 Kristina grilo posted an update: @gilberta719 cut out bread, pasta, white rice and […] https://pulmonaryfibrosisnews.com/forums/activity/p/14331/ Thu, 08 Aug 2019 23:11:06 -0500 @gilberta719 cut out bread, pasta, white rice and anything with sugar and see how fast you will lose the weight….eat nothing but chicken, fish and some beef with tons of vegetables….

]]> 1 80bc76c8441fbe5b0d0192082aa05c55 Kristina grilo posted an update: @steve-dragoo , Thanks Steve, for responding about the […] https://pulmonaryfibrosisnews.com/forums/activity/p/13989/ Fri, 26 Jul 2019 01:24:53 -0500 @steve-dragoo , Thanks Steve, for responding about the Weii products…..I have been reading everyone’s posts for a few months and am learning a lot…I too take serrapapetase, I take it in the middle of the night, 780000 SU’s , and a whole bunch of vitamins during the day…..also laser and Chinese herbs..lol..

]]> 1 e8ccef1a167f9c493883e554948120b3 Kristina grilo posted an update: @steve-dragoo how are the Wii herbs working out for you? […] https://pulmonaryfibrosisnews.com/forums/activity/p/13951/ Wed, 24 Jul 2019 01:04:52 -0500 @steve-dragoo how are the Wii herbs working out for you? I looked into them and they are pricey, however, if they work then…..

]]> 0 1a551af1f1a491089d7e837cc4924c80 Kristina grilo replied to the discussion just want to share some of my experience in the forum Canadians With PF https://pulmonaryfibrosisnews.com/forums/forums/topic/just-want-to-share-some-of-my-experience/#post-20472 Wed, 24 Jul 2019 01:02:04 -0500 Reply to just want to share some of my experience

Steve, how are Wii laboratories herbs working for you?

]]> 946ea3f9c525a99e89d1cdab8ebcc174 Kristina grilo and Andrew Hall DC are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/12118/ Sat, 11 May 2019 18:51:15 -0500 0 1a8f4bad56e357f5aefe8b99aa9cc488 Kristina grilo replied to the discussion Recently diagnosed with IPF & Honeycomb Lung in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/recently-diagnosed-with-ipf-honeycomb-lung/#post-18482 Tue, 16 Apr 2019 14:12:53 -0500 Reply to Recently diagnosed with IPF & Honeycomb Lung

I too live in Florida, Melbourne area….where are you?

]]> 55cb3b9f8b6bb1081d617370c2505bd7 Kristina grilo posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/11324/#acomment-11326 Tue, 16 Apr 2019 01:40:09 -0500 I’m in Melbourne, Florida…how about you?

In reply to - Kristina grilo and John L are now connected ]]> c6ba6bb9a81c9361604b4689887a995f Kristina grilo and John L are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/11324/ Tue, 16 Apr 2019 01:31:33 -0500 2 9cc04b036e8c1a117825982b4bb081e7 Kristina grilo joined the group Research and Development https://pulmonaryfibrosisnews.com/forums/activity/p/11169/ Sun, 14 Apr 2019 03:06:21 -0500 0 764995b12083451cfc4aab3be2640a95 Kristina grilo replied to the discussion New Forum: Laser Therapy Results. in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/new-forum-laser-therapy-results/#post-18033 Sun, 31 Mar 2019 00:40:14 -0500 Reply to New Forum: Laser Therapy Results.

I’ve been doing the laser treatment, I’m on number 16. When I first started, my 02 was 94, now I’m at 96, 98. I have not done a PFT because I dont have health insurance and the test is 700 dollars, I will do one if needed but for now I don’t see the reason. I do have the CT scan that was used to diagnose my IPF, will do another one in a few… Read more

]]> 37fadfcbe696c9692ddeb2baa16f19f3 Kristina grilo replied to the discussion Laser Therapy Part II in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/laser-therapy-part-ii/#post-17569 Mon, 11 Mar 2019 21:10:39 -0500 Reply to Laser Therapy Part II

Hello everyone…..before starting laser theraly, my oxygen level was at 94, after 7 treatments with laser my oxygen is at 97 and 98. I consider that an improvement . Also, I’m not so out of breath and I also feel better. Placebo effect? I don’t think so. I have not gone to a pulmonologist to do a lung test, still waiting on that, but I… Read more

]]> 659a7ad14c1e14c5a323a47af963d298 Kristina grilo posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/9543/#acomment-9566 Wed, 27 Feb 2019 17:35:03 -0600 Thank you Charlene…I was on the inspire forum but left when the conversation started to get a little negative over the laser usage. I read Dr. Hall’s testimony, did some research and decided to try it. I did my 4th treatment today. I do notice a slight difference in how I feel, but it’s still too early in the game. I was diagnosed 4 weeks ago,… Read more

In reply to - Kristina grilo became a registered member ]]> da6030f1c4fe9731f552e57b519ab2b2 Kristina grilo became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/9543/ Wed, 27 Feb 2019 15:18:31 -0600 3