My diagnosis is IPF. I just went to my new pulmonologist a couple weeks ago and he ordered new PFTs. I haven’t had a P pulmonary function test and 2 1/2 years, so I was anxious to see the results. I have actually had a slight increase in long volume and in my overall FVC. My doctor said that is the result of the amount of exercise I do and the…

Read more

The Noble Protocol is one of so many things I’m doing that I’m actually not sure what’s working and what’s not, but the basics of the protocol have just good common sense health attributes. I feel so good every day, I have such great stamina and just never feel fatigued so I don’t want to stop any of the things I’m doing! Also we know zinc…

Read more

His pattern sounds identical to mine. I’m a 66 year old male. Covid in early 2020, missed diagnosis twice and was diagnosed with double pneumonia. Then after CT Scan was diagnosed with advanced pulmonary fibrosis with 31 % remaining lung function. I’ve been on oxygen 24 X 7 since 2021. See my YouTube channel for the things I’ve done to stay…

Read more

Dave if you’re speaking of COLD laser therapy, I’ve had several rounds of it in my first couple years with IPF. I even bought my own device for about $450 so that I could use it at home without driving somewhere to receive treatment. It “may” have helped with inflammation but I was doing multiple protocols to reduce inflammation so I can’t…

Read more

I used the WEI soups and LC in the first year after diagnosis. After the first four weeks I noticed a “subjective” difference. Breathing felt easier. I was already on 3L/5L of oxygen. After 90 days I didn’t feel any more progress so I discontinued. I bought some of the herbs in the mixture such as Cordyceps and have continued to take them…

Read more

I agree with Dawn on the Airofit device. I used a device similar in principle to the Airofit but an older generation model. The diaphragm training increased my lung capacity significantly in a very short time. I have ordered the Airofit after talking to Dawn since the new Airofit Plus not only strengthens your diaphragm but it records…

Read more

My physician convinced me to write my book, and she wrote the foreword to the book.

I take other supplements, such as Dr. Paul Noble of Cedars-Sinai recommended zinc protocol with resveratrol and NAD+.

I use the Peak Flow meter purchased on Amazon. It is digital and very accurate and I’ve used it for two years recording my Spirometry readings weekly. It only costs $30

Yes. I was diagnosed two years ago and applied after a year and was approved. I didn’t want to deal with the SSA and all the red tape, so I hired one of the disability law firms who specialize in it. Klein and Associates were the firm I used. They were excellent. They handled everything and gathered all my medical files and I only had to go for… Read more

the Sinai study on zinc:

I have been using the zinc protocol recommended by Dr. Noble at Sinai. That’s the combination of zinc, picolinate, NAD , and resveratrol . I have had an advanced stage of pulmonary fibrosis for three years that, through exercise, breath and lung pulmonary rehabilitation training, and nutrition I have been able to remain stable and have actually… Read more

Exercise more. Walk more. Develop your leg and trunk muscles. These large muscles require much oxygen and the stronger they are the more efficiently they utilize oxygen. Over two years I have gradually increase exercise every day and while I couldn’t walk twenty steps on 6 liters of oxygen without massive desaturation, when I began exercising it… Read more

Very interesting. Thank you John.
Let me know if you find out more on purchasing it. You can purchase sodium pyruvate but what else is in the nasal spray, I wonder…
Here’s the available product:
BCN Sodium Pyruvate (10 X 2ml)

I use both. Nattokinase at the 2,000 FU potency and Serrapeptase at 120,000 SPU.
I’ve used both for awhile among other things and I have recovered my health greatly. I was diagnosed three years ago with advanced IPF and only 30% remaining lung function. I was on 6 liters of oxygen and unable to walk 20 steps. I never took the antifibrotic… Read more

Gavin, I have been through severe situations with pulmonary fibrosis. I wrote a book that was recently published on Amazon called A Matter of Life and Breath about my journey.
There are some specific exercises I followed for breathlessness and oxygen anxiety. I have also found excellent relief using the Buteyko breathing method. Patrick… Read more

Gavin, your story is heart wrenching. I have traveled down some of the roads you are on.  Thorough pulmonary rehab and exercise and collaboration with my physician I have gotten significantly better over the last 18 months. So much so that, at the urging of my physician, I wrote a book about how I’ve recovered. The book A Matter of Life and… Read more

Rather than wait on pulmonary tests, during the interim periods you can track your own PFTs (with the exception of DLCO which requires a $100,000 machine!). I use a $30 digital spirometer called a Peak Flow Meter that I purchased on Amazon. It measures FEV1 and PEF which are two indicators of lung volume and function.
I tend to battle IPF… Read more

When I was diagnosed with IVF two years ago, I became depressed, was on oxygen at 5 L, 24 x 7, and had very little appetite. I lost 30 pounds, mostly muscle and became emaciated. Once I realized that inactivity was going to be the cause of my death, I started exercising very slowly at first, and always with oxygen. It took a year for me to… Read more

I’ve just written a book on how I recovered my health from being in a place that sounds similar to your mother—unable to walk to the bathroom, on 5 liters oxygen 24 hours a day, very weak. The book won’t be published until late April, but I have a number of questions and possible suggestions for your mother. I’m not a physician, I’m a former… Read more

Hi, 18 months ago I was making plans for end of life that seem to be rapidly approaching, as IPF took a great toll on my health. I spent considerable time reading and meditating and coming to grips with the fact that we all will one day die. I was at a point of giving up, but something inside of me turned, and I decided that first and foremost… Read more