• Glad I listened to this…very interesting and do-able!  So, it’s 7 hours of sleep for me consistently every night.  Very simply put, the subject research suggests that those who have PF and sleep under 4 hours a night are 2 times more likely to experience further fibroid activity in the lungs.  And those who have PF and sleep over 11 hours a ni…[Read more]

  • Happy New Year, Charlene!  Your sneak peek re: ‘CO2 production from foods we eat’ came as an extremely interesting revelation to me and I look forward to reading your full article on Monday.  Will definitely have more feedback for you then…

    What a wonderful opportunity for you to sit next to and engage with Noah Greenspan!  With your im…[Read more]

  • @tomp

    Hi, Tom!  Don’t feel like the Lone Ranger in finding where to post for more info about laser therapy…it’s confusing at first!  Having successfully undergone laser therapy treatments for almost four months in 2019, I am happy to share the link to access laser therapy info on the website of the wonderful doctor who is responsible for s…[Read more]

  • Aloha, Charlene!  You are so sweet for sharing your Hawaiian Awe with us!  Love your pics!  As you described your morning resting in bed while drinking coffee, my immediate thoughts were, “damn, I want to be there, too, drinking Kona coffee and relaxing in the bed right next to yours…feeling buoyant from the lusciously beautiful panoramic vi…[Read more]

  • Marsha posted an update 3 months, 2 weeks ago

    @wendyray
    @drandyhall @charlene-marshall

    Hi, Wendy! I just read your post about starting laser therapy and happily want to share my own laser therapy experience. First, please allow me to say that I understand your fears about the possible negative effect it might have on you, given that you are taking prednisone. I was on 5 mg. prednisone…[Read more]

    • @marshaharris, just so well said! Thank you so much for sharing your experience with Wendy, I am sure it is greatly appreciated. I am so grateful to you and your willingness to share your experiences! Take good care my friend, love hearing from you 🙂
      Charlene

  • @drandyhall @let666 @steve-dragoo

    Thank you, Andy, Steve and Leontis for your kind comments regarding my new numbers!

    Leontis, you asked about my numbers when I was diagnosed in 2015:

    Fvc 87, Fev1 97, DLCO 46.

    After lung surgery and chemo in April 2018:

    Fvc 76, Fev1 78, DLCO 38.

    I started laser treatments late February 2019 and did a PFT in…[Read more]

  • Marsha posted a new activity comment 4 months ago

    You go girl!!! 🌺❤🌺

  • @drandyhall

    Hi, everyone!  Time to share my numbers for my latest PFT done a few weeks ago.  Please note that I began treatment February 2019 according to Dr. Andy’s protocol and for the last two months have been treated once a month.  Current numbers are as high or better than those I posted in April:  FEV remains at 91; FEV1 up 2% to 91, and…[Read more]

  • Marsha posted a new activity comment 4 months ago

    Hi, Charlene! I am so excited at your excitement of travelling to our beautiful and exotic Hawaiian Islands in less than a week! I wish you all the fun, adventure, joy, awe, serenity and relaxation that each unique Island offers you like a gift that you well deserve!
    If there is a site through which I am able to travel with you, please let me…[Read more]

    • Hi Marsha,

      So nice to hear from you, as always … thanks for writing! I am just so excited to get to Hawaii I can barely focus and wrap up my days at work. I just have to get through a wedding this weekend then it is full-speed ahead to beaches and blue skies! I haven’t figured out a site for traveling, but I have made a commitment to ensuring…[Read more]

  • Susan, first, I send you warm hugs and total understanding of how you must be feeling.  Depressed?  Absolutely.  Angry?  I would certainly think so!

    When only one month after chemo and continuing IPF, I saw my Pulmonologist who told me to stay active all day (no laying down) and use my bed only to sleep (“dance around and play” she said).  I felt…[Read more]

  • @drandyhall  @charlene-marshall
    Thank you, Andy, @drandy for sharing your thoughts on this “new territory” (good call!) of long-term laser use.  You always have a way of clarifying the big picture and then addressing the necessary details within it…surely one of your many gifts that I so admire!  I will address the situation with Dr. Cebek wh…[Read more]

  • G’morning, Andy @drandy and Charlene @charlene-marshall!  It feels like forever since we’ve been in touch and I hope you are both doing well.  My reason for posting is confirmation re laser treatment protocol.  Dr. Cebek (who has been wonderful since I started seeing him last February) has recently started scheduling me for treatment once every tw…[Read more]

  • @tmoriarty

    Terry, I so appreciate your post!  Makes me not quite so concerned about my DLCO at 28! I was diagnosed in 2015 and use oxygen at 3-4 24/7 at present.  I us the Inogen system for all my oxygen needs and my rep’s name at Inogen is Fred. He is great and I recommend him when you call for your own system! Just ask for him! I find my s…[Read more]

  • Hi, Liam and all…

    I, too, am concerned about a decrease of my DLCO (I call it my “output” number) from 38 to 28 over the past year (my other numbers which I call “oxygen input”) went up to 78 and 82.  While I am happy about the ones that went up (which are a direct result of Dr. Hall’s @drandyhall) laser therapy treatments which I’ve been…[Read more]

  • I am so pleased to report that my recent PFT, 6-minute walk and CT scan indicate that I am experiencing every single benefit of laser therapy since I started treatment last February! And I have the tests to back it up!!</p>
    The Radiologist’s findings unequivocally state that all aspects of my CT scan (of just two days ago) are unchanged from my CT…[Read more]

  • Marsha posted a new activity comment 8 months, 4 weeks ago

    Thank you, Andy…nothing like positive substantiation!! Blessings to you!

  • Marsha posted a new activity comment 8 months, 4 weeks ago

    @drandyhall
    @charleen-marshall
    Happy Friday, Charlene and Andy! Thank you for your kind words re: my post to Betty last week…you guys rock!!
    All the possible positive effects of Class IV Laser therapy showed up in the numbers of my PFT! BAM!! FVC up to 82 from 76 a year ago and FEV up to 86 from 78! Improved oxygenation? Yes!

    I am…[Read more]

    • Happy Friday to you!
      I am totally thrilled that you have seen good changes in your PFT. AND it’s very substantial change at that!!! The good thing is that you are feeling improved and able to do more, have improved quality of life, but it is substantiated in your test results. So GLAD you started laser therapy!
      God Bless!
      Andy

  • Marsha posted an update 9 months ago

    @betty-edwards
    @drandyhall
    @charlene-marshall

    Hi. Betty….the laser therapy I have been “enjoying” since last February is done with the Laser IV as Dr. Hall described in his response to your inquiry. It truly is a very calming warmth that I “enjoy” along with such gratitude for Dr. Hall’s commitment to get the word out to people like…[Read more]

    • Thanks Marsha, i’ll Start in May.

      • Hi Marsha,
        You know, it’s posts like yours that make all my effort SO worthwhile! I can’t even begin to tell you how happy I am to know that things have changed for the better for you! I will be anxious to hear how your recent PFT compared to the last one…….
        Blessings,
        Andy

        • I couldn’t agree with you more @drandyhall! I am so happy for you @marshaharris and so glad you’re able to do more around the house, even with your 02 and most importantly of all, that you feel your life is more fulfilling than ever before. Thank you so much for sharing this with all of us; it warmed my heart and I am so grateful that you’re…[Read more]

        • @drandyhall
          @charleen-marshall
          Happy Friday, Charlene and Andy! Thank you for your kind words re: my post to Betty last week…you guys rock!!
          All the possible positive effects of Class IV Laser therapy showed up in the numbers of my PFT! BAM!! FVC up to 82 from 76 a year ago and FEV up to 86 from 78! Improved oxygenation? Yes!

          I am…[Read more]

          • Happy Friday to you!
            I am totally thrilled that you have seen good changes in your PFT. AND it’s very substantial change at that!!! The good thing is that you are feeling improved and able to do more, have improved quality of life, but it is substantiated in your test results. So GLAD you started laser therapy!
            God Bless!
            Andy

  • Marsha posted an update 9 months, 1 week ago

    @drandyhall @charlene-marshall

    Great morning to you! Hope you are both doing well…I am feeling much better! Thought I’d give you a heads up about my scheduled PFT tomorrow morning. I’m a bit anxious, however, I’m committed to my mantra: I choose not to overthink! So, I am prepared to do my very best and pass the good news on to you as soon…[Read more]

    • Great mornig to you too!!! So glad you are feeling much better! We will be keeping good thoughts for you tomorrow. I know you will do your best and I’ll be anxious to hear how it goes.
      Blessings to you!
      Andy

      • Hi @marshaharris,

        So great to hear from you! Really happy to hear that you’re feeling much better, and really hope that your PFT went well this past week. I love your mantra, great thing for all of us to remember and I hope it helped you feel a little less anxious for your tests. Eager to hear the news, hoping it is good! Thank you again for…[Read more]

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