• Susan, first, I send you warm hugs and total understanding of how you must be feeling.  Depressed?  Absolutely.  Angry?  I would certainly think so!

    When only one month after chemo and continuing IPF, I saw my Pulmonologist who told me to stay active all day (no laying down) and use my bed only to sleep (“dance around and play” she said).  I felt…[Read more]

  • @drandyhall  @charlene-marshall
    Thank you, Andy, @drandy for sharing your thoughts on this “new territory” (good call!) of long-term laser use.  You always have a way of clarifying the big picture and then addressing the necessary details within it…surely one of your many gifts that I so admire!  I will address the situation with Dr. Cebek wh…[Read more]

  • G’morning, Andy @drandy and Charlene @charlene-marshall!  It feels like forever since we’ve been in touch and I hope you are both doing well.  My reason for posting is confirmation re laser treatment protocol.  Dr. Cebek (who has been wonderful since I started seeing him last February) has recently started scheduling me for treatment once every tw…[Read more]

  • @tmoriarty

    Terry, I so appreciate your post!  Makes me not quite so concerned about my DLCO at 28! I was diagnosed in 2015 and use oxygen at 3-4 24/7 at present.  I us the Inogen system for all my oxygen needs and my rep’s name at Inogen is Fred. He is great and I recommend him when you call for your own system! Just ask for him! I find my s…[Read more]

  • Hi, Liam and all…

    I, too, am concerned about a decrease of my DLCO (I call it my “output” number) from 38 to 28 over the past year (my other numbers which I call “oxygen input”) went up to 78 and 82.  While I am happy about the ones that went up (which are a direct result of Dr. Hall’s @drandyhall) laser therapy treatments which I’ve been…[Read more]

  • I am so pleased to report that my recent PFT, 6-minute walk and CT scan indicate that I am experiencing every single benefit of laser therapy since I started treatment last February! And I have the tests to back it up!!</p>
    The Radiologist’s findings unequivocally state that all aspects of my CT scan (of just two days ago) are unchanged from my CT…[Read more]

  • Marsha posted a new activity comment 3 months, 4 weeks ago

    Thank you, Andy…nothing like positive substantiation!! Blessings to you!

  • Marsha posted a new activity comment 3 months, 4 weeks ago

    @drandyhall
    @charleen-marshall
    Happy Friday, Charlene and Andy! Thank you for your kind words re: my post to Betty last week…you guys rock!!
    All the possible positive effects of Class IV Laser therapy showed up in the numbers of my PFT! BAM!! FVC up to 82 from 76 a year ago and FEV up to 86 from 78! Improved oxygenation? Yes!

    I am…[Read more]

    • Happy Friday to you!
      I am totally thrilled that you have seen good changes in your PFT. AND it’s very substantial change at that!!! The good thing is that you are feeling improved and able to do more, have improved quality of life, but it is substantiated in your test results. So GLAD you started laser therapy!
      God Bless!
      Andy

  • Marsha posted an update 4 months ago

    @betty-edwards
    @drandyhall
    @charlene-marshall

    Hi. Betty….the laser therapy I have been “enjoying” since last February is done with the Laser IV as Dr. Hall described in his response to your inquiry. It truly is a very calming warmth that I “enjoy” along with such gratitude for Dr. Hall’s commitment to get the word out to people like…[Read more]

    • Thanks Marsha, i’ll Start in May.

      • Hi Marsha,
        You know, it’s posts like yours that make all my effort SO worthwhile! I can’t even begin to tell you how happy I am to know that things have changed for the better for you! I will be anxious to hear how your recent PFT compared to the last one…….
        Blessings,
        Andy

        • I couldn’t agree with you more @drandyhall! I am so happy for you @marshaharris and so glad you’re able to do more around the house, even with your 02 and most importantly of all, that you feel your life is more fulfilling than ever before. Thank you so much for sharing this with all of us; it warmed my heart and I am so grateful that you’re…[Read more]

        • @drandyhall
          @charleen-marshall
          Happy Friday, Charlene and Andy! Thank you for your kind words re: my post to Betty last week…you guys rock!!
          All the possible positive effects of Class IV Laser therapy showed up in the numbers of my PFT! BAM!! FVC up to 82 from 76 a year ago and FEV up to 86 from 78! Improved oxygenation? Yes!

          I am…[Read more]

          • Happy Friday to you!
            I am totally thrilled that you have seen good changes in your PFT. AND it’s very substantial change at that!!! The good thing is that you are feeling improved and able to do more, have improved quality of life, but it is substantiated in your test results. So GLAD you started laser therapy!
            God Bless!
            Andy

  • Marsha posted an update 4 months, 1 week ago

    @drandyhall @charlene-marshall

    Great morning to you! Hope you are both doing well…I am feeling much better! Thought I’d give you a heads up about my scheduled PFT tomorrow morning. I’m a bit anxious, however, I’m committed to my mantra: I choose not to overthink! So, I am prepared to do my very best and pass the good news on to you as soon…[Read more]

    • Great mornig to you too!!! So glad you are feeling much better! We will be keeping good thoughts for you tomorrow. I know you will do your best and I’ll be anxious to hear how it goes.
      Blessings to you!
      Andy

      • Hi @marshaharris,

        So great to hear from you! Really happy to hear that you’re feeling much better, and really hope that your PFT went well this past week. I love your mantra, great thing for all of us to remember and I hope it helped you feel a little less anxious for your tests. Eager to hear the news, hoping it is good! Thank you again for…[Read more]

  • Marsha posted an update 4 months, 2 weeks ago

    @drandyhall
    @charlene-marshall
    Good morning! Hope you are both enjoying some warmer weather as we are in Pittsburgh! I have come down with a stubborn head cold and will not schedule my PFT until I’m certain it is gone! I don’t believe it has traveled down to my lungs, however, if it isn’t better by Monday, 4-8, I plan to call my Pulmonologist to…[Read more]

    • Good morning Marsha! I happen to be in Montrose, Colorado right now, but the weather is in the 50’s, at least as good or better than in the mtns in Calif. Get to see family and the 2 1/2 YO grand-daughter.
      SO SORRY to hear about the head cold, esp going into the chest! I agree, you should put off the PFT until you are better. We will all be…[Read more]

      • Good morning @marshaharris, thanks so much for writing but so sorry to hear of the stubborn head cold my friend. Take good care of yourself to ensure it doesn’t travel into your lungs! I guess getting a cold can be part of welcoming spring, huh? Many of my colleagues also seem to have it right now and I am doing my best to stay healthy as I am…[Read more]

  • Marsha posted an update 4 months, 4 weeks ago

    Good morning! @drandyhall
    @charlene-marshall
    My update: I received my 12th treatment from Dr. Cebek yesterday and at my request, my pulmonologist issued an order for a PFT this morning. I’m going to do the PFT next week and will post my results, quantitative and qualitative, as soon as the report is available to me. I will also mail PFT…[Read more]

    • HI Marsha,

      So glad to hear you are doing better!
      The timing is good for your PFT, and I will really be looking forward to seeing the results!
      Amazing to know that this is the best you have felt in 2 years, just awesome!
      It’s great Charlene gets to go to Hawaii, I’m sure she won’t miss the cold in Canada one bit! She deserves a break and I’m…[Read more]

      • Hello my friend @marshaharris! Thank you so much for writing to both Andy and I – it is wonderful to hear from you, as always! So glad laser continues to go well for you, and I am hopeful that the PFTs reflect some good news. Sounds like the timing will be ideal now that you’ve finished your 12th round of laser. Wishing you goodluck with it my…[Read more]

  • Hi, Andy @drandyhall!  Just checking to be sure you received the test results I mailed to you.  If you have, no need to respond!

    I saw Dr. Cebek this morning (#9).  I am feeling so good that I was able to even do some apt. cleaning yesterday (without even needing to raise my oxygen to a higher level during exertion)!!   Of course I am extr…[Read more]

  • Charlene, @charlene-marshall, I would love to meet you for coffee in Australia! I thought you’d never ask!  Just give me the date and I will be there…maybe I’ll even stay there, who knows?

    Yes, the past 10 days or so I’ve pushed myself too far and it definitely is apparent by the way I feel. Today I made some changes to my calendar that will…[Read more]

  • Hi, Charlene! @charlene-marshall.  I am definitely going to eat more pineappple to see it’s effect on phlegm (I don’t have it often) and if it might relieve my coughing which seems to be happening more than before.

    My only comment on this lovely fruit is I believe it is quite acidic (gonna look it up…be right back… I just googled it and…[Read more]

  • Happy Friday, Charlene! @charlene-marshall

    So, what would you like in your coffee?  (I’m pretending you’re seated across from me…!)  Thank you for your sweet and encouraging message yesterday.  I felt warm fuzzies as I read it…  I hope you will set aside a whole day this weekend for yourself…perhaps we can have coffee again before you lea…[Read more]

  • Good morning, Charlene and Dr. Andy! @drandy Thank you for your encouraging posts….I always feel uplifted when I read them!  So true, Andy, about Pulmonary Rehab.  With the energy it takes for me to even get myself there, I usually feel like going right back home!  The potential benefit, however, is worth it.

    I will keep y’all in the loop an…[Read more]

  • @drandyhall @charlenemarshal

    YAY!! Great to see you are back, Dr. Andy!  You were missed by all. Thank you and Charlene for the many hours you spent trying to keep things moving in spite of all the crazy happenings of the past 13 days.  I hope you got some rest and are weighing in on the positive side of your respective IPF scales!

    I am happy t…[Read more]

  • Marsha posted a new activity comment 6 months ago

    Good evening, Andy @drandyhall and Charlene @charlene-marshall! I spoke with Dr. Cebek this afternoon and will have my first appt. with him this Friday!! I so appreciate all the help you both have given me to make this happen and will keep you posted….
    I hope you are having better days this week than last!
    Warm regards and blessings, Marsha

    • Hi @marshaharris, so glad to hear this! I will be thinking of you both on Friday, please circle back if you think of it and let us know how it goes. It sounds like Dr. Hall speaks highly of Dr. Cebek, so I am sure it will go well. Take care, and I know I owe you an email back 🙂 I appreciate your update!

      Cheers,
      Charlene.

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