Midge Sanford
Forum Replies Created
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This is an amazing price for esbriet! I have used Cost Plus for other medications that cost much more than what my Medicare Part D insurance pays. Good for him for making this happen. It can help a lot of people.
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I have a dry cough (I cough throughout the day) and am on Esbriet. I used to cough more when lying on one pillow when ready to go to sleep, but have added a pillow and my cough is much better as a result. Worth a try!
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I was diagnosed in July 2019, at age 77, and did not tell my adult children for over a year. I agonized over this decision, but realized that being honest was the right thing to do. I called each of them and they very much appreciated it. I told them the name of the disease but did not go into detail about the seriousness of pulmonary fibrosis and how long I might live — who knows, anyway? They could look it up themselves if they wanted more information. My sister and my mother both died of a lung disease, but since I had always been so healthy, they were shocked (as was I) to find this out. My only symptoms are a dry cough and breathlessness when walking uphill (which I avoid!). Generally, when I think about making a decision I decide if I would regret it if I went in a certain direction and not the other. I felt that my children would be even more upset if when I died I hadn’t told them. You have introduced them to the fact that you have a lung condition, which is a good first step. Best of luck!
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When my Medicare Part D Insurance did not cover Esbriet, my pulmonologist’s pharmacy (at Cedar’s Sinai in Los Angeles) got me in touch with Genentech, the manufacturer, and I have been getting the medication for FREE for the last year and a half or so. Good luck! See below:
SUPPORT
Genentech Patient Resource Center
Our center dedicated to getting patients and caregivers to the right resources.
Call us at (877) 436-3683 or (877) GENENTECH, Monday-Friday, 6am-5pm PT.Genentech Access Solutions
This service offers coverage support, patient assistance, and other useful information.Genentech Patient Foundation
Provides free medicine to patients without insurance coverage or who can’t pay for their Genentech medicine.RESOURCES
Esbriet.com
Provides additional resources and information. -
I too have been struggling to maintain my weight and not lose anymore. (I have lost about 10 pounds in the last year and a half.) I am eating foods I was very careful about before my diagnosis — like ice cream and cookies, which I now have every day! I am on esbriet and it has changed my appetite, food aversions etc. I have scheduled an appointment with a dietician to get some help with this.