Sam Gilmore
Forum Replies Created
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That sound good l have found Silver Shield gell works great it softens stuff in nose makes it easy to remove
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Sounds familiar Terry except I do have my family to talk to. Im 74 years old. I have had IPf for about 4 years. am on oxygen 24-7 I went from 20L oxygen to now 7L. If I do anything I become short of breath. I haven’t been out of my house in year and a half. My doctors visits are all virtual. I cant even take a shower now with out becoming breathless down to 65-75 Oximeter reading I am usually 90 -98 at rest. Any way I guess we are all in the same boat. This IPF is merciless. We are all waiting for the ultimate out come. Everybody take care and try and keep a good attitude.
My faith in Jehovah God and his word and my family give me comfort. Take care Be safe all. -
I know how your mom feels. I am 73 year old self made man. I was very active and some what prideful in a good way man I came down with IPF like 4 years ago the worst day of my life was the day I was diagnosed. Embarrassed Having to be helped by my family sometimes I feel so helpless on O2 24-7 Not active hardly at all even with Oxygen. The feeling helpless is the worst but you just have to realize you can only do so much and except what you can and cannot do. I thank every day for my wife of 54 years and y 4 sons. One thing that helps is discussing this with my family and all know the end and what to expect. Give your mom a hug and keep your dignity Take care
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I have had neck pain for several months now. I use a lotion called Tei-Fu by Natures Sunshine it does help some. My pain comes and goes I dont know if IPF has anything to do with it or not. I have had IPF for 3-4 years and the pain started a few month ago. I talked to my Dr and they dont know. So I am dealing with it as best as I can Mine is mostly at the base of my neck. Sorry I dont have much to help. Take care,
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Sorry to hear about your mom . I am dealing with the oxygen too I am on it 24-7 even then I get breathless. Your Doc will need to prescribe oxygen for you they have suppliers that they go through. Hope that helps
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No not really My last appointments have been virtual. However I did go in for a CT scan but I could not do it I cant lay flat my head needs to be elevated and my arms over my head, and also lay on my stomach I cant do any of those things. As they started to put me in the tube I said no cant do this pull me out.. So I did not get the CT so Im not sure what my DR wants me to try next. I have had IPF for 3 years and on 5 oxygen now I don’t think I have to much time left. Don’t get around much spend time with my family and that keeps me going. Sorry to get off track.
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I have been on Oxygen 24-7 for several months now. While I am at rest my level is 85-98 but if I get up to do anything it drops between 78-85 while on oxygen. I am considering getting a Mobility scooter to help me get around the house from room to room. Anyone have experience with the scooters? Than you Sam G
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What a great topic. I have been on oxygen for about year have had IPF for about 4 years. I use oxygen when I am active but when I am resting I do not use it all the time only when I feel a need for or get panicky which happens. I will use it to bring my lungs back to the 90s. I do think its important to try an strengthen the lungs as much as I can. Thank you all for this helpful information. Sam
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I have not read any thing new about Wei but would like to know more Can anybody share
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I have a portable oxygen concentrator called a OxyGo Next It’s lightweight and fits in a bag to carry around very convenient weighs 4.7 pounds. Through my insurance I pay 37.00 a month and that includes the Home concentrator also. Hope this helps.
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Thank you I do better in cooler temps. When I first came down the IPF the cold really bothered me but know the warmer temps do. Texas is good place for us, most of the time. Y’all take care.
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I live in Texas so we don’t get below 45 degrees hardly ever. But I feel better when its cold. But here we are averaging 70-75 so far early Nov and thats ok better than 100+ like we get in the summer ..
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I have had IPF for 4 years at first I had no quality of life. After talking to my Dr. He put me on Prednisone been on it for about two years at 10mg what a difference I know there are side effects but to me the benefits out way the side effects. I also know that there is no cure at this time. Just take a day at a time. You will have good days and some not so good. Just keep a positive attitude.. Prednisone has certainly helped me.
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I know how you feel when I had no energy to even get out of bed no quality life. I was first diagnosed with IPF 4 years ago I am 74 years old . My first doctor was not very encouraging my wife and I left his office feeling hopeless and afraid I felt like a was given a death sentence. After a few months I decided to find another doctor specializes in IPF. He took more test and put me on Prednisone regimen. I am now taking 10mg and feel good most of the time. Energy is high. I do use oxygen as needed at #2. This does not have to ruin your life just take care of your self eat health and no we wont beat this IPF but we can live with it. Take care and I wish you the best. The unknown can be frightful but don’t let it control you.
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My United Healthcare insurance covers Oxygen it cost me about 37 a month for a portable and a stay at home Oxygen devices.
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I have IPF for 4 years now and doing good I do use Oxygen as needed not all the time. But yes it does help when I become tired or short of breath. Your Doctor does have to prescribe it but its not a big deal . Talk to your Doctor. The test is very simple just a matter of checking your oxygen level.
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I have not heard of Laser therapy is it new? Where can I get more information about it? Thank you
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I do not have a tailored program I do walk and ride exercycle for about 10 – 15 min. a day Because of energy level that’s about all I can do. So many days I do not have enough energy to do much more. I am 73 years old had IPF for 4 years but am doing pretty good just tired many times.
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Thank you I have found that a product called Neospoin.. it works greatly a few days in nose couple times s day works thank you
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I am on oxygen 24-7 I have a home concentrator and a portable concentrator both work very well. How ever I do get brethless when I get active it will go from 98 at rest to 75-85 when active. So I dont get the excursive I need.
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I have been diagnosed IPF 3 years ago. Using oxygen for about 2 years I’m on 7-24 now set at 5 I’m at 95–98 resting but as soon as I get up and walk 5ft it drops to 65-75 I have. Difficulty moving from room to room. I am looking into getting a Motorized Chair so I can get around. I know I don’t have to much time left I am making of it the best I can. My wife and 3 sons are so. Helpful not sure what I would do without them. You all take care and be safe
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Thank you for your input about WEI it is very expensive and from what I have read I don’t think it will help me much. I am going on my 5th year with this thing IPF it has affected my life allot but I am still doing pretty good am on oxygen when I some what active life. not like before. I am enjoying my family and my 9 year old and 3 month old grandchildren. Again thank you for your info. My wife is an Herbalist and I am just going to stick with what she suggests.
Sam