Steve Dragoo
Forum Replies Created
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@Charlene Marshall – that’s a very good find. Thanks for sharing…
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I have used serrapeptase for 7+ years and it still takes care of most of that problem. It does get worse as we progress through IPF/PF. There are some cautions – it can never be taken around any other pills and avoid food for at least an hour. Let me know if you want some more information…
Stay well…
Steve -
With something this easy to grow in SE Asia, you would think you can buy it somewhere…
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Coming up on 9 years in October, I can understand how some might feel that way, Charlene. It is sad and can even be discouraging when someone we know suffering through any form of PF has gone to their rest. Many times, I see survivors post that they are thankful for our support and glad their loved one is no longer suffering. To many, that becomes a blessing. We that survive longer become the voice of experience, and that blesses me to know I have positively influenced someone in their doubt or even shame.
As I have witnessed hundreds upon hundreds of people dealing with some darkness in their lives, I know that we were never created to or have learned how to deal with negative emotions. A lot of people become stuck at that stage and never successfully process through grief that may be ongoing in this world. Thankfully, I look for peace and harmony, even love and joy, with Whom I serve.
Stay well…
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Only a class IV laser works. Dr Andrew Hall has the protocol on his website. He is a chiropractor in Sonora CA. Hope it helps…
Steve
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Been using it for mucous 7 years. Caution do not take with any other pills for at least 2 hours, as it will dissolve them fast, also no food for a couple of hours. I take 720,000 SU (6 pills) before bed and buy it on AZ – delayed release. It has been used for liver scar tissue for decades and may – emphasis – help in the lungs.
Stay well…
Steve -
8 years ago, I started having serious mucus problems and did some research about Serrapeptase, it was initially used to reduce scar tissue in the liver for a long time. Tried it then still use it now BUT a very serious warning it is measured in SU and I take about 500000 su in the evening before sleep (4 pills) – the warning is NEVER take it anywhere close to other pills – it dissolves them faster and that’s not good, never take with food. Serrfapeptase dissolves protein, which it sees as pills and food as in general.
If you can find a version that delays dissolving, that will allow it to reach your gut more, instead of stomach acid dissolving it with less effect.
Stay well…
Steve -
Sorry for your loss Samuel… Steve
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When I cough, sometimes people give a harsh stare because they are afraid (post-COVID?). To avoid the blank stare after a conversation of IPF, etc, I just say, “allergies – gotta love ’em,” and move on…
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Your O2 provider may have a mask you can use instead of a cannula to help you while walking. All my life, my nose could randomly plug some, so the small mask with a hole in it helps when I need O2 and my nose says nope.
Stay well…
Steve
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I flew back from the Philippines 16 months ago which took almost 2 days and had no O2. Currently on 2L during any activity but 16 months ago only needed O2 at night.
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I take a substantial number of supplements, including those 2. Not knowing your situation, many can benefit from D3, K2, and a good B-complex.
I was in the Philippines for several years, and they know nothing about IPF and its siblings. So, being on my own, I discovered several things that work for me. At almost 76 and 8.5 years into this lovely disease, I have been deeply blessed…
Stay well
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What were your results in the trial and post? Thanks…
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I’ve been looking for a reasonably priced continuous flow POC up to 4L. Any insights? Thanks…
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There is a vast amount of waste and corruption in our top-heavy government which will cause far more serious future consequences if not dealt with. However, at least initially, legitimate research will not feel much of an impact.
I had to survive on my own for several years in the Philippines where there was little help for ILD/IPF/PF – except O2. So if I have to do it again, I will…
Stay well…
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Hi Tempo – AE can be substantially different per individual and per incident. Had at least 2. The 1st was almost devastating. Initially I could not not sit up in bed. Didn’t eat for almost 6 weeks but I don’t recommend it as a weight loss program. It took almost 10 months before I could help again around the house and I have never recovered completely since Sept 2020. The 2nd was May 2022 and was much milder mainly was very tired and weak but got through it ok.
Any cold or – worse – the flu has a harsher impact on those with IPF I was 1st diagnosed with ILD Oct 2016 in the Philippines at age 67 and will be 76 in May. So this coming Oct will be 9 years into this lovely disease.
Lots of things you can do to help yourself.
Stay well…
Steve -
Regards Dextromethorphan – it is is some cough syrup OTC and I use it almost daily for 2+ years but have zero insight for stopping/slowing (I)PF. A quick AI search indicates it may help buttttt – it is AI saying that..
Interested in the German study…
Stay well,
Steve
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I have looked at it and may get a small unit later on but it can be a little dangerous if not used specifically. I would ask about it with a few doctors, maybe even AI.
Stay well,
Steve
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I have a friend married for 57 years and his wife is quite ill with COPD, covid and covid pneumonia. I cannot imagine your loss but you have some fantastic memories to look back on. Nothing will fill the loneliness but One thing I have found – a daily Spiritual walk, about the only thing of hope and consistency in this world…
Steve
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Wll do. I was offered a slot in phase 2 of the Boheinger but out of the country at the time so missed it…
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Thanks a lot Alex. Good insights. I’ve been on this platform (PF News) since mid-2018…
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They have been very slow in completing registration last July, Andy…
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Hi – there are a couple that offer genuine continuous flow but hard to find…
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I don’t see this as a political post, it is currently a fact of life and may eventually affect us more or less.
Stay well…
Steve