Steve Dragoo
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Hello to all,
Several have asked me what I am taking. I will post below but I just started both supplements less than 10 days ago. My IPF seems slow growth and sometimes I have a good diet other times not at all. So at 69 I do take several supplements that I have researched over the years several times. Rather they help IPF or not I cannot say but they generally help my BP, BS, endurance, brain function, and more. I will list those below also.
Since being diagnosed 2 months ago, I have looked a lot at video’s about lung help/cleanse and I will post the one that is easiest for anyone to do below. It is turmeric, real raw honey, and fresh ground pepper.
Somewhere on the internet there are several lists of optimal foods for the lungs all of us could use. Additionally it is important our magnesium and D3 levels are average or above – according to several I have talked to regards immune defense. Next blood test you do ask for those to be added.
Regards Metformin, I hope my PT will be able to get the white paper soon but all drugs – ALL – have side effects. Food is for living people, drugs are for dying people says a doctor friend of mine. With that said I do take a small dose of Metformin being diabetic but diet is a much better long term course.
This is not a recommendation to anyone and I am 6′ tall at 230 lbs, 69 years old. Ok I take: Alpha Lipoic Acid 300 mg daily (Time Release – important or it’s a waste), D3 2000 IU – it is important to take K2 with D3, – I take 200 mcg daily, Co Q10 hi absorption 200 mg, Vit A 5000 IU, Vit E 400 IU (d-alpha tocopherol) Ginko Biloba 120 mg (just started again after 20 year absence).
The 2 Chinese supplements are Astragalus 2000 mg (can take more safely but I cannot advise how much, also one brief I read implies it is mildly successful in reversing IPF – unverified), and something called Clear Lung extra strength (the strength amount per pill is a little confusing but I take 3 – 5 of these daily).
Lastly, I just started a few essential oils in a diffuser and will need to experiment to figure it out. One expensive EO (I did not get yet) has a couple recommendations (unverified) specific to IPF but EO is unregulated and purity is always suspect.
Here are the links I mentioned (I am not an affiliate of any of these): Turmeric/honey – https://www.youtube.com/watch?v=KnCDzAHtjAM
Astragalus: https://www.amazon.com/gp/product/B075VCD82Y/ref=oh_aui_detailpage_o03_s00?ie=UTF8&psc=1
Clear Lung: https://www.amazon.com/gp/product/B0016AV5IE/ref=oh_aui_detailpage_o06_s00?ie=UTF8&th=1
Input definitely welcome…
Steve
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Howdy – been to TX a number of times closest to you was Johnson City and maybe Shreveport LA. Was diagnosed abut 3 months ago but I believe I may have started having symptoms in late 2016 in Manila. Using VA Hospital system in Salem, VA – live in Roanoke. VA is a little similar to a HMO – you have to ask but you do get. Currently have a terrific pulmonologist and she referred me to an outside pulmonary PT clinic – they are researching a recent white paper about Metformin for me and will post what I learn when they get the info. Not in a group other than my church and a group at VA called M.O.V.E. Try to stay active as much as you can and change your diet – fresh, raw, organic. Currently on my own as my wife is in the Philippines so that’s not a lot of fun as I had to break the news to her via Skype. Diagnosis gives a new sense of urgency…
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Michael – there are a couple different herb formulas I’m trying that support and may even reverse (not clear)PF. My PT is trying to get the full Metformin report but that could take a while, however it is/was lab induced fibrosis and lab controlled. That alone leaves a lot to discover. If you want more on these two herb supplements let me know. – Steve
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PS from above. One user inhales through the mouth and exhales through the nose. Just tried it and that is more effective. I also asked the general community what holds the oils (are there any carrier oils – if so what).. Thanks again for this thread. – Steve
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Hi Charlene – the inhaler I mentioned in another thread has 4 essential oils and Himalayan salt. Been using it about a week and like its’ refreshing action. In reading the reviews by verified buyers, helped me decide. Supposedly it will last for several years if resealed properly. At $10 if it only lasted a year that would be a good bargain to me (no – I am not an Amazon Affiliate). Yes I would buy it again. Here is where I found it on Amazon: https://www.amazon.com/gp/product/B00TWTGP4U/ref=oh_aui_detailpage_o02_s00?ie=UTF8&th=1 . Thanks! – Steve
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Charlene – I think each of us will have a different response to the herbs in the lung flush. Took one today start 2 tomorrow and every day. Like the inhaler – it is refreshing…
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Hi Charlene,
The veggie caps/inhaler arrived today. Veggie caps link: https://www.amazon.com/gp/product/B0016AV5IE/ref=oh_aui_detailpage_o00_s00?ie=UTF8&psc=1.
The inhaler is the old type vicks nose inhaler. Inhaler link: https://www.amazon.com/gp/product/B00TWTGP4U/ref=oh_aui_detailpage_o00_s00?ie=UTF8&th=1 .
Wellness is our duty…
Steve
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Hey Charlene,
I will ask my pulmPT next week about specific breathing exercises and I do know a couple. Thanks for offering. The heat? Well I have been seen walking barefoot in snow just a few years ago but I spent the last 2 years in the Philippines so now the heat is familiar…. Been stateside since April and almost froze then in Roanoke, VA… hahahahah
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So what’s better; barefoot at the beach r baorefoot in the snow? I don’t know I’ll let you know when I get home after I finish looking for my shoes. I left them in the Alps somewhere….. Peace…
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Hi Christine,
Thanks for your response. I was diagnosed a couple months ago but started having problems late 2016. Just started pulmonary PT and it is more a general workout so far. I am unfamiliar w liter measurements yet but the PlumPT should involve ways to expand capacity as much as possible while still able. That’s why I mentioned my doctor friend.
So we can independently practice longer breathes while walking on flat surfaces to help inflate/expand the lungs. Best success to you… Steve
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Hi Charlene,
In one of your earlier posts here you mentioned pulmonary PT. Did they teach you any specific breathing exercises? I have a doctor friend who practices taking 8 – 10 steps breath in; 8 – 10 breath out. That seems like a good idea to work on for us. Thoughts?
Thanks,
Steve
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Hi Charlene – I bought capsules with a slightly different formula (few dollars more) and an essential oil(s) nose inhaler. Soon will buy a nebulizer and several pure oils and dilute with a top coconut carrier oil. Some close to me gave some worthy advice to go on a strict juice regimen for 60 days. I am working on the recipe and can share if you want later. Basically it is carrots beets and dark leafy greens being the bulk. Drink 90 ounces per day. Hope your efforts are successful. – Steve
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Thanks Sandra – your post started me looking at other Amazon lung cleanse options and there are several. Some veggie caps and other mixtures. I will be adding a few essential oils soon too and will try the veggie caps first and maybe an inhaler that looks useful on AZ… Steve
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