Mary Susan Satterwhite

[Mary Susan Satterwhite]

Hello friends,   I dont really notice my fingers clubbing but my fingernails are. They are flatter and wider and curve over end of finger tips. Nails on both great toes have developed thicker nails and are growing very strange. I feel like I need to file or dreamed off the extra nail, but will consult podiatrist. All of this started when I started Ofev , a drug that has bad side effects, but works. I hate the loose stools , nausea and fatigue, but will stay on it until my lung transplant soon…

[Mary Susan Satterwhite]

I Take 150 mg every 12 hours and I hate the constant diarrhea and weakness, but i do breath better so I do it…I am meeting with the transplant team this Friday so will see how that goes..

[Mary Susan Satterwhite]

Sorry to hear about your adverse reaction to the Moderna vaccine, I had first and second injections with only very sore arm. I have not noticed a change in my breathing related to the vaccines. I am 69 years old.I am on OFEV and cell cept, I have been on bothe for 6 months and although my PFTs have slightly declined, I breath better and maintain my sats better, I would like to get a lung and will try and get my Dt to get me referred. My BMI has always been too high for a lung, until new, and I am now down enough to qualify I think. Wish me luck..

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