People who endure a traumatic experience often divide their lives into before and after the trauma. I’ve heard this is true of those who survive a transplant in the lung disease community. Pre-transplant life is very different than post-operative life. I anticipate this will be true for me post transplant;…
I Was a Different Person Before and After My IPF Diagnosis
A protein called TL1A drives fibrosis in diseases such as idiopathic pulmonary fibrosis (IPF), asthma, and systemic sclerosis by interacting with a receptor called DR3, a study reports. Disrupting this interaction might prevent the formation of fibrotic tissue. These findings are described in the study “TL1A…
Boehringer Ingelheim Canada and the University Hospital Foundation (UHF) established the Alberta Boehringer Ingelheim Interstitial Lung Disease (ABILD), a new partnership with a focus on progressive fibrosing interstitial lung disease (ILD). ILDs comprise more than 200 respiratory diseases known to cause breathing difficulties. About 18% to 32% of…
Patients diagnosed with idiopathic pulmonary fibrosis (IPF) in more recent years appear to have a lower risk of mortality on a short-term basis than those diagnosed more than 10 years ago, a study has found. According to the researchers, these differences in short-term mortality may be due to changes…
The medical facility at the military base where my husband is stationed is enormous. Almost every specialty you can imagine is under one roof. The first time I had an appointment there, the scheduler instructed me over the phone to visit the “Jay Team”…
The Centers for Medicare and Medicaid Services (CMS) has given the status of Advanced Diagnostic Laboratory Test (ADLT) to the Envisia Genomic Classifier, Veracyte’s genomic test specifically designed to facilitate the diagnosis of idiopathic pulmonary fibrosis (IPF) and other interstitial lung diseases (ILDs). The…
Exercising with a chronic lung disease is not for the faint of heart. Recall your most strenuous workout or physical activity: Your heart beats rapidly, you struggle to catch your breath, and sweat beads down your forehead. Now imagine doing that with lungs that feel stiff and painful upon inhalation.
Action for Pulmonary Fibrosis (APF) and the U.K. Royal College of General Practitioners (RCGP) have created and launched a training module to help doctors provide better care for patients with pulmonary fibrosis (PF). The training will cover the signs and symptoms of PF, as well as where to…
The amount of bilirubin in the blood might predict the progression of idiopathic pulmonary fibrosis (IPF), according to a recent study. If validated in larger studies, bilirubin levels in the blood — or serum bilirubin — could offer a cheaper, simpler, and more convenient blood test than other…
From lighting landmarks in blue to showcasing patient stories, supporters are finding ways to mark Pulmonary Fibrosis Awareness Month, set aside each September to call attention to the lung condition and raise funds to fight it. The monthlong campaign is spearheaded each year by the Pulmonary Fibrosis Foundation…
