Adjust, adjust, adjust… Part of living with pulmonary fibrosis is adjusting to changes that happen as our disease worsens. There is so much to adjust to that it can be overwhelming at times. Supplemental oxygen I first started using supplemental oxygen two months after I received my diagnosis.
Learning to Adjust As PF Worsens
We only get one set of lungs so it’s imperative that we look after them. This is even more important when it comes to diseases that directly affect the lungs, as keeping lungs healthy can help slow down the progression of the disease and ease the symptoms. To help you take the best…
I have always enjoyed traveling and have been privileged enough as a young adult to enjoy vacations that span the globe. While some were related with business, such as being flown to Calgary, Saskatchewan, Halifax, New York City, Dubai, Colorado, California and Washington, others were purely for leisure. If you…
Doctors increasingly recognize nutrition as a key factor in improving overall function, exercise tolerance and quality of life in patients with pulmonary fibrosis and other lung diseases. With that in mind, a team has reviewed current literature and summarized nutritional goals for lung disease patients. The review titled “Nutrition…
A first clinical trial of the safety and tolerability of a potential treatment for idiopathic pulmonary fibrosis (IPF) and other fibrotic diseases — PAT-1251, being developed by PharmAkea — was successfully completed in healthy volunteers, the company announced. PAT-1251 is an investigational small-molecule designed to specifically inhibit the LOXL2 enzyme. Patients with fibrotic illnesses,…
This past weekend, I was able to get away from all of my medical treatments, therapies, and appointments and spend time at my cottage with two dear friends. We had been planning this for a long time, and I knew it was going to be a weekend…
https://vimeo.com/210444194 In this video from MultiVu Video, New York Yankees All-Star Bernie Williams talks about his father’s experience with idiopathic pulmonary fibrosis (IPF). MORE: Six ways to manage your health when you have pulmonary fibrosis Bernabé Williams Sr. was a major influence in his son’s life and…
Ethris has joined efforts with AstraZeneca and its biologics research and development arm MedImmune to develop novel mRNA-based therapies for respiratory diseases such as idiopathic pulmonary fibrosis (IPF), asthma, and chronic obstructive pulmonary disease (COPD). Under the terms of the five-year research agreement, Ethris will receive 25 million euros…
Actor and comedian Jerry Lewis passed away peacefully at his home in Las Vegas on Sunday, August 20. According to a report in people.com, he died from natural causes surrounded by his family. MORE: Six ways to manage your health when you have pulmonary fibrosis Famous for his slapstick…
I had the pleasure of being a patient guest on a live webinar last week, which shared information about the IPF Catalyst Challenge – a contest with a $1 million prize to come up with solutions to help PF patients. This contest invites the brightest…
