The American Lung Association‘s website includes its “Inspire” forum dedicated to pulmonary fibrosis patients and caregivers. The online platform has over a million members who discuss various topics and share practical advice and emotional support with others. It also allows users to stay up to date on news about research, new treatments,…
American Lung Association Provides Online Platform for Pulmonary Fibrosis Patients
A molecular cascade that prompts stem cells used in lung transplants to drive fibrotic processes is responsible for the low survival rates of patients who obtain transplants, according to a study. The research also identified potential treatments to slow the fibrosis or scarring process. The good news is that is that the…
This is a difficult blog to write I’ve been making decisions about how to spend my limited time and energy wisely. I was hoping to bounce back after I experienced a decrease in lung function about two months ago. But a trip to my doctor caused me…
What’s your nighttime routine like? In this humorous video from Gifted Lift, Lauren gives us a sneak peek into her nighttime routine as a person with a chronic illness. Find out how we can work together to raise awareness of pulmonary fibrosis. Having a healthy snack, enjoying life to the fullest, checking in…
After a week filled with others doing things to help me, including spending more than six hours on a weeknight helping me move to a new home, I was thrilled to be able to do something for someone else this weekend. The joy I felt from cooking…
Pulmonary fibrosis refers to scarring of the lungs. It’s a chronic degenerative disease which leads to shortness of breath and fatigue. To help you explain the disease to others, we’ve put together a brief guide using information from the Pulmonary Fibrosis Trust. What is pulmonary fibrosis and idiopathic pulmonary fibrosis? Pulmonary…
When patients with idiopathic pulmonary fibrosis (IPF) get involved in treatment decisions, it is likely to increase the dialogue between them and their doctors, according to a global survey supported by Boehringer Ingelheim. A key survey finding was that two of three IPF patients are involved in treatment decisions.
According to a metro.co.uk report, a woman from Ballycastle, Northern Ireland has been diagnosed with the same disease that killed her mother and two of her siblings. What’s the future of pulmonary fibrosis treatment? Find out more. Sixty-five-year-old Una McMillan was stunned to find that she had been diagnosed with the…
Researchers discovered a molecule that promotes lung fibrosis by integrating large amounts of data from patients, cell experiments, and animal models. They also used a big data approach to identify a potential treatment that targets the factor — a cancer therapy that is already in clinical trials. The study,…
Do you ever feel that sharing difficult news about yourself is a burden on your friends? I have been struggling a little with this recently and, as a result, I am feeling very alone. Writing this column is not easy. To explain further, I have an upcoming…
