A case study of a pulmonary fibrosis patient who was ultimately diagnosed with liver cirrhosis and a telomere length disorder, highlighted the need to consider whether short telomere syndrome is present in people with lung fibrosis and cirrhotic liver. The findings were published in the journal QJM: An International Journal…
IPF Case Study Raises Possibility of Short Telomere Syndrome as Comorbidity
Idiopathic Pulmonary Fibrosis: Some Keys Facts
“A short video containing key facts and statistics about idiopathic pulmonary fibrosis. A disease which is five times more common than cystic fibrosis, however is almost unheard of by the vast majority of the public. Together we can raise awareness for this life-threatening illness.” Learn more about idiopathic…
Pulmonary Fibrosis Awareness
https://www.youtube.com/watch?v=45usWTn8wvo “5 million people worldwide have a form of pulmonary fibrosis; most patients are diagnosed 1 to 12 years after their first symptoms.” Learn more about pulmonary fibrosis:Â https://bit.ly/1lfMsiZ…
Lung Transplants: What You Need to Know
Lungs are vital organs. They allow the body to take in oxygen and get rid of carbon dioxide, which is what we call respirations. Sometimes the immune system does not react well to the new lungs after a lung transplant. Watch the video to learn more about this.
Meet youtuber Kelly Patricia and watch her talk and explain how it is to live with an invisible illness. “I made this video in honor of all of us who are fighting invisible illnesses. I hope that this can have its own meaning to you. Always remember that…
Pulmonary Fibrosis Treatment with OFEV and Esbriet
https://www.youtube.com/watch?v=DGOc-O6244w Watch Dr. Kevin Huffman, from the Lung Institute, Tampa, Florida, talk about the “FDA fast-tracked Ofev and Esbriet as approved medications for IPF. Together with stem cell therapy, we’re closer to finding a cure for IPF.” Learn more about IPF:Â https://bit.ly/1QiRmr3…
My Life with Pulmonary Fibrosis: Mel Bennett’s Story
Meet Mel Bennett. In this 2012 video, he tells us about his life living with pulmonary fibrosis. He explains how he was diagnosed and how his life became after he got the news. He was told he would only have 2 and a half years to live. Learn more about…
Searching for Information on NINTEDANIB?
Searching for information on #NINTEDANIB? Read the most relevant articles here: https://bit.ly/1FWuPxw …
Idiopathic Pulmonary Fibrosis – “My Father’s Story”
https://www.youtube.com/watch?v=nC9aRdM7xzM Meet Andy. In this touching video, he talks about idiopathic pulmonary fibrosis, the disease that took his father’s life. In a very emotional speech, Andy takes us through his father’s life, from the diagnosis to the doctors appointments and up until his death. “If you or someone you know has…
Last Week’s Hot Topic on Pulmonary Fibrosis
Last week’s hot topic on pulmonary fibrosis was Mechanotherapy Promotes Regeneration of Fibrotic Tissues, Study Shows written by Patricia Inacio. This article is focused on researchers who discovered that mechanotherapy on damaged muscle tissue reduces both fibrotic tissue accumulation and inflammation while helping to increase tissue…
Your PF Community
Recent Posts
- New IPF therapy modulates genes tied to inflammation and scarring February 4, 2026
- My journey with PF and transplant means lifelong medical surveillance February 3, 2026
- Learning about the link between autoimmune disease and PF January 29, 2026
- Researchers ID 4 gene biomarkers that could help in early IPF diagnosis January 28, 2026
- How the PFF’s 5-year plan seeks to expand access to expert care January 27, 2026
