Coinciding with the Rare Disease Day 2016 theme, “Patient Voice — Join us in making the voice of rare diseases heard,” an international survey’s results were released, giving voice to more than 500 idiopathic pulmonary fibrosis (IPF) patients across 20 countries, and detailing the tumult of emotions they experience living with a…
IPF Survey Gives Voice to Frustrations, Emotional Toll of Lung Disease
In this video from 2014, learn some tips on how to increase your lung and breathing capacity using a 3-minute lesson based on the Feldenkrais Method® with Annie Thoe, Feldenkrais Practitioner. “Work with sensing skeletal support, relaxation and extending the exhale with mindful movement. Improve the quality and ease…
“In December, 2014 Mike Olsen was diagnosed with idiopathic pulmonary fibrosis, which causes scarring of the lungs. In this moving film, Videobred’s Danny Chastain and Fiona Martin tell Mike’s story as he battles this ultimately fatal disease while working tirelessly to raise awareness of the affliction.” Learn more about…
IVA337, the leading drug candidate from the biopharmaceutical company Inventiva, received a prize at the recent 4th Systemic Sclerosis World Congress for its innovative character in treating systemic sclerosis. IVA337 is currently being tested in a Phase 2b clinical trial. At the congress, Inventiva researchers showed that IVA337 has…
After 6 years of infertility, suffering from pulmonary fibrosis (PF), 36-year-old Sonica was finally able to get pregant. Now almost 13 weeks into the pregnancy, she shares her experience. Learn about PF and keep updated on all the latest news here: https://bit.ly/1VElTQA…
This is the first of a series of videos created by the Juravinski Cancer Center in order to help patients with lung disease, as in the case of pulmonary fibrosis (PF), breathe better. Read more on PF and keep updated on all the latest news here: https://bit.ly/1VElTQA…
Mitophagy, a protective mechanism against mitochondria reactive oxygen species (ROS), in lung macrophages is a key mechanism underlying the development of pulmonary fibrosis, according to a study titled “Macrophage Akt1 Kinase-Mediated Mitophagy Modulates Apoptosis Resistance and Pulmonary Fibrosis,” and published in the journal Immunity. Alveolar macrophages,…
Prof. Vincent Cottin discusses the diseases which IPF is often confused with. For example, NSIP (non-specific interstitial pneumonia) because of similar imaging and clinical features between both diseases. Read more about idiopathic pulmonary fibrosis here: https://bit.ly/1QiRmr3…
BoehringerUS shared this video where you can see, with a true patient story, how it is to live with idiopathic pulmonary fibrosis (IPF). Watch the video to learn more about it and how pulmonary fibrosis patients caregivers deal with the disease. Learn…
