In the three weeks between my boyfriend Jonny’s proposal and our spontaneous elopement, we daydreamed about a big wedding. We decided to get married before he left for a year of training and school with the Army. Despite our legal union, we still wanted to celebrate with a ceremony of…
The Washington Research Foundation (WRF) has awarded a $250,000 grant to support the development of a novel miniprotein binder to help treat idiopathic pulmonary fibrosis (IPF). The grant was awarded to Anindya Roy, PhD, an acting instructor and senior fellow at the University of…
Nominations are now open for the worldwide 2022 Black Pearl Awards from Eurordis-Rare Diseases Europe. The 12 award categories recognize individual advocates, policy makers, researchers, organizations, and companies who work to make a difference for the global rare disease community. The deadline for nominations is Sept. 10…
Excessive amounts of inflammation in the body often accompany chronic illness. For people living with idiopathic pulmonary fibrosis (IPF), a progressive and life-threatening lung disease, effectively managing inflammation is important to overall health and is a popular topic of discussion among IPF patients in our Pulmonary Fibrosis News Forums.
Enrollment has resumed, under a revised trial protocol, in the Phase 2b study GALACTIC-1, which is evaluating Galecto’s investigational inhaled therapy GB0139 in adults with idiopathic pulmonary fibrosis (IPF). Galecto in March had been advised to stop recruiting and treating certain trial participants after disparities were…
In February of 2016, I joined the Greater Kansas City Pulmonary Fibrosis Support Group. As I attended more meetings, I realized PF awareness was important, and I wanted to make a difference. Because I had a unique case of idiopathic pulmonary fibrosis (IPF) with ossification that excluded me from…
NeRRe Therapeutics has raised £20 million (nearly $28 million) to develop orvepitant as a treatment for the chronic cough that can impact quality of life for people with idiopathic pulmonary fibrosis (IPF). Orvepitant’s efficacy has been demonstrated in patients with refractory or unexplained chronic cough associated with reflex…
Researchers at the University of Alberta are studying whether combining a commercially available wearable device with artificial intelligence can effectively predict symptom worsening in people with chronic lung conditions, such as idiopathic pulmonary fibrosis (IPF). Developed by New York-based Health Care Originals to monitor asthma, the ADAMM-RSM…
With an emphasis on research and how well patients are living, the Pulmonary Fibrosis Foundation’s (PFF) PFF Summit 2021 is set to take place virtually Nov. 8–13. The global biennial pulmonary fibrosis (PF) conference, which is sponsored in part by Boehringer Ingelheim, will offer live, interactive educational…
Throughout their lives, many people experience an array of ups and downs. Days, months, or even years can be plagued with challenges that seem unfair. Conversely, people also can experience prolonged periods when things go well. Rare disease patients who frequently experience ups and downs caused by their illness know…
Get regular updates to your inbox.
