The National Organization for Rare Disorders, known as NORD, was named an official charity partner of the 2021 TCS New York City Marathon, which will be held Nov. 7 both in-person and online. “Supporting charitable causes and organizations are a long-standing tradition of the TCS New York City…
‘Running for Rare’: NORD a Charity Partner of 2021 NYC Marathon
Photo courtesy of Gail Hicks Day 3 of 30 This is Gail Hicks’ story: My name is Gail Hicks, and my PF story began in February 2017. I had been out of breath and coughing uncontrollably for several months. We were getting ready for a trip to Florida,…
Aiming to get people at risk for lung disorders more quickly diagnosed and treated, nine patient organizations — including the Pulmonary Fibrosis Foundation (PFF) — are collaborating to present the first Interstitial Lung Disease (ILD) Day, to be held Wednesday, Sept. 15. The goal of the daylong observance is…
Photo courtesy of Barbara Grubb Day 2 of 30 This is Barbara Grubb’s story: My story begins like that of many IPF patients. I had a chronic cough for years and it was a long time before I received my diagnosis. I went to my doctor countless times…
Like with all chronic illnesses, patients living with idiopathic pulmonary fibrosis (IPF) have a lot to contend with. Although IPF is a progressive and life-threatening lung disease, the physical challenges it presents, such as shortness of breath, fatigue, and cough, are often not the most difficult aspect. At least,…
Photo courtesy of Dana Olson Day 1 of 30 This is Dana Olson’s story: On Aug. 13, 2020, my husband, Kevin, received his life-saving call. He needed to get across the state to St. Louis within 4.5 hours — a donor’s lungs had been found for him! Talk about…
September is Pulmonary Fibrosis (PF) Awareness Month, and organizations across the globe are doing their part to bring more public education to the rare lung disease that affects more than 250,000 people in the U.S. The Pulmonary Fibrosis Foundation (PFF) is spearheading the U.S. efforts with its theme…
When I volunteered to coordinate the Pulmonary Fibrosis News initiative “30 Days of PF” alongside fellow columnist Charlene Marshall, I didn’t expect a tremendously emotional experience. I asked my wife, Dana, to write her pulmonary fibrosis (PF) story for this program. She had difficulty covering seven years in 400 words,…
A protein called PDIA3 is overactive in pulmonary fibrosis (PF), and contributes to the disease by driving the production of signaling molecules that promote tissue scarring, a new study shows. The researchers found that blocking PDIA3 activity can lessen such fibrosis, or tissue scarring, in a mouse model of…
TXR-1002 and TXR-1007, two new therapeutic candidates for idiopathic pulmonary fibrosis (IPF) from Aria Pharmaceuticals, demonstrated significant efficacy at reducing tissue scarring and good tolerability in a mouse model of the disease. Moreover, Aria said, the new artificial intelligence approach its researchers used in the lab to identify and…
