I’ve held three full-time jobs in my career, each averaging about 40 hours per week. I’ve never tracked the number of hours I spend managing my chronic illness, but it wouldn’t surprise me if they equate to a full-time workweek. Since being diagnosed with idiopathic pulmonary fibrosis (IPF) three years ago,…
Columns
As I move through the seasons of this year, I can’t help but feel the imprint of the events and emotions of last year. I keep comparing moments from now to this time one year ago. There are many unofficial anniversaries that my internal clocks have kept. As we…
When I was diagnosed with idiopathic pulmonary fibrosis (IPF) three years ago, I had never heard of the disease. I was told that it was rare. Even rarer, my doctors said, was my diagnosis at 28. They had considered IPF when first looking for answers for my breathlessness,…
I try to practice gratitude every day. The word “practice” is appropriate. Viewing daily trials through a lens of gratitude did not come to me by instinct or inheritance. I started doing it several years ago to try and force myself out of a funk. Writing down something that I…
The world is a different place than it was a decade ago, especially in the realm of technology and social media. Smart devices track daily tasks, remind users to complete to-do lists, help with budgeting, and navigate driving routes. There are a number of ways technology can help patients…
I am slowly emerging following several weeks of hospital visits and confinement to bed. I’ve been extremely weak and unable to eat thanks to bacterial pneumonia and the influenza virus. Either of these illnesses alone is enough to kill a patient living with a chronic lung disease such as idiopathic…
When I started writing this column it felt like such a gift to have a space to share my story. I didn’t care if anyone but my editors read my posts. Maybe it’s selfish, but this is a way for me to process the experiences I had related to…
Thanksgiving is over, but my feeling of gratitude remains. As a single-lung transplant recipient, the holiday is a time for me to contemplate the tremendous gift given to me on Dec. 4, 2015. I have just passed my fourth “lungiversary.” As I look back at my experience, I find it…
I love Christmas and all that comes with it: the lights, music, decorations, parades, and Christmas trees. But I know that the season is a stressful and lonely time for some people. Christmas isn’t for everyone. This especially can be true for families facing hardships, or those who are spending…
Healthy eating is a popular topic on the Pulmonary Fibrosis News Forums. Members discuss their attempts to promote optimal pulmonary wellness by improving their eating habits. They also share what foods they avoid because of side effects and what foods help them feel better. Someone once said, “Eat…
