• Managing survivor’s guilt with PF

    Posted by Charlene on July 29, 2025 at 9:00 am

    Since my diagnosis of IPF several years ago, I’ve come to know and love many members of the IPF community. One thing that makes these forums so special is the sense of community felt across the site. Everyone shares so openly and is very supportive of one another.

    The hardest part about the special community of IPF patients is when we lose someone we love. I’m grateful for the In Loving Memory forum to keep their memory alive. However, it never gets easier when one of our fellow patients dies.

    As a surviving IPF patient, do you ever experience survivor’s guilt? And if so, how do you manage it? 

    Steve Dragoo replied 1 month ago 2 Members · 1 Reply
  • 1 Reply
  • Steve Dragoo

    Member
    July 29, 2025 at 5:05 pm

    Coming up on 9 years in October, I can understand how some might feel that way, Charlene. It is sad and can even be discouraging when someone we know suffering through any form of PF has gone to their rest. Many times, I see survivors post that they are thankful for our support and glad their loved one is no longer suffering. To many, that becomes a blessing. We that survive longer become the voice of experience, and that blesses me to know I have positively influenced someone in their doubt or even shame.

    As I have witnessed hundreds upon hundreds of people dealing with some darkness in their lives, I know that we were never created to or have learned how to deal with negative emotions. A lot of people become stuck at that stage and never successfully process through grief that may be ongoing in this world. Thankfully, I look for peace and harmony, even love and joy, with Whom I serve.

    Stay well…

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