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  • Local, International and Online Resources for Pulmonary Fibrosis

    Posted by Charlene Marshall on June 2, 2018 at 2:38 pm

    For patients living with idiopathic pulmonary fibrosis (IPF), it is helpful to be aware of the supports and services available to support you with your disease. Some of these resources can be local, and others can support patients internationally, however, they are only helpful if patients are aware of them.

    Sometimes amidst all the other chaos that comes with living with IPF, researching resources are not high priority for patients. Taleena Koch knew this when she collated a resource sheet for PF/IPF patients, regardless of where they live. Taleena very compassionately and closely supported her Mother through her PF journey and is committed to supporting patients in person and online. Below is a sheet filled with IPF/PF resources that Taleena created, which are organized by country for those of us in different parts of the world. Take a look if this interests you, perhaps there are some in your area that you were unaware of.

    This is not likely to be a comprehensive list of all services and services due to them rapidly changing. Are you aware of an additional resource that would be helpful to add to this list? Please share it with us!

    *Please also note: we are sharing these resources for informational-purposes only and are not endorsing them, or encouraging you to seek support in one vs. the other. Please spend time doing your own research and how these services and supports can most assist you depending on your need(s).

    replied 5 years, 11 months ago 1 Member · 0 Replies
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