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    • #29835
      Isaura Santos

        We hear about Tom Johnson, and how he was diagnosed with idiopathic pulmonary fibrosis (IPF) nearly 12 months ago. His pulmonologist originally gave him a life expectancy of 3–15+ years. One year has now gone by since then.

        At 74 years of age, Tom feels reconciled with the “finality” of IPF — he believes he has lived a long life, always aware of the possible health detriments of some of his choices – he used to be a heavy smoker.

        He tries not to question whether he will be around for certain life events, so he now manages his expectations, and those of his extended family. Despite the uncertainty, he is thankful to have a certain survival probability when most people don’t have a clue until death finds them by surprise.

        Talking about death always makes me a tad nervous. It really is a heavy subject! But this is a safe place, so let’s give it a go. What are your thoughts on looking at life long-term?

        Tom’s full story is on our Instagram! Go check it out and do give us a follow so you don’t miss out on any #30DaysofPF stories. There is much more to come!


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