For sale

This topic has 9 replies, 8 voices, and was last updated 4 months, 2 weeks ago by R. Chris.

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- January 13, 2022 at 4:15 pm #30742
  Doug
  Participant
  Is it appropriate to sell something using this forum.. I have had to switch from my simpli go mini to tanks and have two good batteries that I would like to get rid of.
- January 14, 2022 at 9:09 am #30748
  Kevin Schaefer
  Keymaster
  Hi Doug, advertising is prohibited on this site. See our policies here: https://pulmonaryfibrosisnews.com/forums/about-our-forums/
  - November 3, 2022 at 9:33 am #33484
    Joe Pierce
    Keymaster
    Hi Kevin,
    
    I see that you started offering opt-out notification links.
    
    Thank you!
- January 16, 2022 at 3:30 pm #30761
  Doug
  Participant
  Thank you. I had no intention of violating policy; that is why I asked.
  - January 17, 2022 at 8:30 am #30763
    Kevin Schaefer
    Keymaster
    No prob, thanks for checking!
- April 11, 2022 at 9:07 am #31631
  Jag Chopra
  Participant
  Kevin,
  
  I just now joined the site. Can you share with me I want to join the user group forum? I am suffering from IPF for the last 15 years….these days have a lot on my mind….can you help me.
  - April 12, 2022 at 10:52 pm #31676
    Christie Patient
    Participant
    Hi Jag, I sent you a message but just in case you didn’t see it. I can help you learn to use the site if you still need guidance. Let me know.
    Christie
    - April 21, 2022 at 11:07 am #31747
      Christine McCann
      Participant
      
      15 yrs wow isn’t that some kind of milestone since they tell you 2 to 4 after diagnosis? What have you been doing to last so long? I don’t think the only 2 meds to slow down progression were available 15 yrs ago. Congrats.
- April 21, 2022 at 2:14 pm #31750
  James
  Participant
  15 years???? I’ll have what you are taking!! That is awesome and hope you have another 15 years.
- November 3, 2022 at 2:28 pm #33487
  Pete Besio
  Participant
  15 years is awesome, and let the be an informative piece of information to newcomers to the group. If your pulmonologist is indicating a 2-4 ( or more commonly 3-5) year life expectancy, it is time to find a new pulmonologist. That data predates the approval of OFEV and Esbriet, which have been available for a long time. We regularly see people in these forums that have live much longer.
  
  congrats on 15 years, I plan on achieving that milestone too!
- November 3, 2022 at 2:32 pm #33488
  R. Chris
  Participant
  Yeah, fifteen years? I am now two weeks from 5 years and feel darn fortunate for that. First on OFEV, with some problems that had me switching to Esbriet. Full dose, 801mg, 3X daily. Before not long ago access to either, OFEV or Esbriet, 5 years would had most likely been the end of it all. Fifteen? There must be more to this story.
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