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    • #30742

        Is it appropriate to sell something using this forum.. I have had to switch from my simpli go mini to tanks and have two good batteries that I would like to get rid of.

      • #30748
        Kevin Schaefer

          Hi Doug, advertising is prohibited on this site. See our policies here:

          • #33484
            Joe Pierce

              Hi Kevin,

              I see that you started offering opt-out notification links.

              Thank you!

          • #30761


              Thank you.  I had no intention of violating policy; that is why I asked.

            • #31631
              Jag Chopra


                I just now joined the site. Can you share with me I want to join the user group forum? I am suffering from IPF for the last 15 years….these days have a lot on my mind….can you help me.

                • #31676
                  Christie Patient

                    Hi Jag, I sent you a message but just in case you didn’t see it. I can help you learn to use the site if you still need guidance. Let me know.

                    • #31747
                      Christine McCann

                        15 yrs wow isn’t that some kind of milestone since they tell you 2 to 4 after diagnosis? What have you been doing to last so long? I don’t think the only 2 meds to slow down progression were available 15 yrs ago. Congrats.

                  • #31750

                      15 years???? I’ll have what you are taking!!  That is awesome and hope you have another 15 years.

                    • #33487
                      Pete Besio

                        15 years is awesome, and let the be an informative piece of information to newcomers to the group. If your pulmonologist is indicating a 2-4 ( or more commonly 3-5) year life expectancy, it is time to find a new pulmonologist. That data predates the approval of OFEV and Esbriet, which have been available for a long time. We regularly see people in these forums that have live much longer.

                        congrats on 15 years, I plan on achieving that milestone too!

                      • #33488
                        R. Chris

                          Yeah, fifteen years? I am now two weeks from 5 years and feel darn fortunate for that. First on OFEV, with some problems that had me switching to Esbriet. Full dose, 801mg, 3X daily. Before not long ago access to either, OFEV or Esbriet, 5 years would had most likely been the end of it all. Fifteen? There must be more to this story.



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