Quality of life
Hi! My beloved is in the process of getting evaluated at St Joseph in Phoenix and here is my current question for those of you who have both been on either ofev or Esbriet and gotten a transplant:are the antifibrotics worth it? Is your quality of life better with the transplant than on the meds?
His quality of life is much lower because of the side effects of the ofev, and he’s tried everything anyone can suggest to mitigate the digestive hell. He’ll probably need to try Esbriet. But I wonder if he shouldn’t prioritize quality of life by stopping the antifibrotics and taking his chances that his lung deterioration is accelerated and he gets a transplant sooner. He’s 62 and has no comorbidities that we know of.
If you’ve been in this situation, we’d love your thoughts and opinions and to know what your experiences have been. What has been best for you and do you have any regrets or wisdom to share? Thanks so much!
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