Hi Jill, generally your first contact should be a referral from your pulmonologist (or cardiologist or PCM). If you haven’t heard from someone within several weeks, it is worth calling your referring physician’s office to check on the status of the referral. You can ask if the transplant center has a referral coordinator or patient advocate that might help expedite the process on the receiving end.
Thanks so much for your info! I’m getting both responses…most people do as you suggested, some went straight to the transplant center. It’s been pretty interesting to see. We have a great and responsive pulmonologist, so I think we’ll start with him. Thanks!
Jill, I think that contacting a transplant center can done either way – by you or your pulmonologist – . My pulmonologist contacted one center for me and I contacted 3 more. With all 4 centers I had zoom meetings to determine if I could ba a candidate for a transplantation.
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