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    • #16846

      There is no doubt in my mind that I’ve been battling some sort of virus for the past few weeks. First it started with a full-blown cold, inclusive of a sore throat, headache, chills, slight fever, etc. While those symptoms have thankfully gone away, I am still left with some unpleasant side effects from some type of virus. I suspect it’s a virus mostly because many of my colleagues are dealing with the same issues, and we share an office space. I also haven’t made any recent changes to my diet, medications or lifestyle otherwise to induce the recent, and random, bouts of nausea.

      I would suspect this to come from a new medication, or if I had other symptoms more reflective of a flu bug but thankfully I don’t. Other than extreme fatigue some days (more than normal, I know this is a common occurrence for those of us living with idiopathic pulmonary fibrosis, IPF), the only other thing I’ve been dealing with as a side effect of this virus is nausea, sometimes extreme. Do any of you deal with this periodically or on an unexpected basis?

      When I am sick, or have a new drug that they’ve told me to expect some episodes of nausea, my typical go-to remedies for this are:

      • Crystallized ginger: typically I can’t stand the taste of ginger, especially in solid form but I find gnawing on little bits of this at a time helps. I can only tolerate this for so long, but I do find it helpful to just take little bites of it when an episode of nausea happens.
      • Gingerale: I am also not really someone to ever drink any type of soda, as I don’t enjoy carbonated drinks, so combined with my dislike of ginger – I am surprised I reach for gingerale when I am sick. Perhaps it is a comfort of my childhood when my parents would give it to me when I came home from school feeling unwell.
      • Cool cloth on my forehead: I’m not sure why this tends to help, but it does, especially if I lay flat on my back with my eyes closed and put the cloth over my eyes and forehead.
      • Gravol: this remedy isn’t always possible because it makes me drowsy (even daytime Gravol) but I often reach for it if the more natural remedies don’t work.

       

      Do you deal with random, but frequent episodes of nausea since your IPF/PF diagnosis?

      Do you have any tips on how to relieve this unwanted symptom, preferably naturally? 

    • #16867

      Dear all

      Since taking OFEV, I have been feeling nauseated from time to time. By observing in detail what could be the same every time, I realized that often happened during the morning, when I was taking my treatment before making a physical effort, never in the evening or at night.

      So I shifted OFEV taking after my morning exercise, I start them earlier and before breakfast, and I then take a good brunch (including OFEV). Since nausea episodes are much unusual.

      Unfortunately no efficient tip how to relieve it

      Take Care

      Jean-Michel

      • #16889

        Hi Jean-Michel,

        Thanks so much for sharing your experience with Ofev and contributing to this topic thread. I am always really interested in hearing from others on this drug. I am also on Ofev, and typically never had issues before, but I do wonder if I am becoming more intolerant of it and that is the cause of my nausea? I know other members have suddenly developed an issue with Ofev and remember them saying nausea became an issue for them. That memory wasn’t triggered until now, something I should consider…

        Thanks for sharing how to have reduced the nausea, maybe I should re-evaluate when I take it or try taking it a different way to see if I can eliminate the nausea. I just can’t imagine a virus lasting this long without many other symptoms. I hope it isn’t the Ofev, as it’s been pretty good for me up until this point if it is that. Thanks for sharing Jean-Michel, I hope you’re having a nice week so far!

        Charlene.

    • #16876
      Donald Otis
      Participant

      Oh, my god. Esbriet, even after the reformulation, still makes me sick. Ofev was worse, way worse. In the very beginning of treatment, in 2015, my pulmonologist diagnosed my symptoms as 24/7 morning sickness. In 18 months, I dropped 35 – 40 pounds.

      One thing that really helped was THC, the active ingredient in marijuana. Of course, I can’t smoke, so I have used edibles and topical products. I believe that this is one of the reasons I didn’t just shuffle off in the last three years, and I advocate its use. You have to start low and slow, but you may find relief.

      The other thing, the one that really works, always works – Zofran. If you are on either Esbriet or Ofev, it is my firm opinion that you should have an open scrip for  Zofran. My pulmonologist agrees.

      Man, best luck.

      • #16890

        Hi Donald,

        Thanks so much for writing to us and contributing your experience to this topic thread, although your experience with the anti-fibrotic drugs sounds terrible. So sorry you had to endure that! I’ve heard a lot of people have a hard time with Esbriet, but Ofev tends to be a bit better (for some), although of course everyone is different. Feeling like you have morning sickness 24/7 would be absolutely terrible – I can’t imagine! Thankfully my nausea isn’t that bad, but I am closely keeping an eye on it to ensure it doesn’t get that way. I am wondering now if it is me developing an intolerance to Ofev…

        I have a script for Zofran, although waiting to get it re-filled on Thursday when I am at the doctors. Thanks for that reminder, and for the information about THC as well. Will keep that in mind!

        Hang in there, and as always, thanks for writing!
        Charlene.

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