ajd
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ajd
MemberFebruary 27, 2020 at 12:28 am in reply to: Nearly 40% of IPF Patients in the US Not Prescribed Esbriet or Ofev Despite Effectiveness, Study ReportsI heard the drug was marginally effective. i better do my research again.
Tony
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The report at https://www.emphycorp.com/pulmonary-fibrosis-treatment
does not seem to indicate that it slows progression of pulmonary fibrosis but that it improves symptoms, correct me if I am wrong.
looks like you can buy it on Amazon for $10.00.
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Good luck Lorraine! Sounds like fun. I have picked up my guitar again after many years and it is difficult. Even more difficult than playing is trying to sing along with it. I have very little air in my lungs and can only get out a few words. Then I have to get a couple of breaths in before I can do a few more words and by then the song is far beyond the last words haha. So I understand the difficulty you must have trying to play a wind instrument. Hopefully it will help to improve your lung capacity.
Please keep us informed on any improvement to your lungs that this might have.
Best wishes,
Tony DeGidio
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Charlene,
I purchased the herbs requred to make the PRM mxture but it is far too complicated for me to make the mxture itself. I did not pay attention to it at first but upon closer inspection saw that it was not a simple matter of sticking some weeds in the blender then boiling them in water.
As the instructions in the study stated it required “them being “…. mixed and then extracted twice in 50% ethanol for 24 h each time. Then the extracted solution was combined and evaporated to dryness under reduced pressure. Then, the crude extract was reconstituted with distilled water. The solution was then centrifuged at 3000 g for 15 min at 4 °C, and the supernatant was collected as PRM. The concentration of PRM was 0.5 g crude drug per milliliter. To control the quality of PRM, its fingerprint was prepared by high performance liquid chromatographic method (HPLC) at 254 nm and is shown in Fig. 1. The content of Calycosin, calycosin-7-O-glucoside, formononetin, ononin and mangiferin in PRM was quantitatively analyzed. The content was 124.4 µg/g of calycosin, 220.4 µg/g of calycosin-7-O-glucoside, 50.8 µg/g of formononetin, 173.6 µg/g of ononin, and 296.7 µg/g of mangiferin.”
This is far beyond my knowledge or capabilities and I don’t have a centrifige laying around my place. so I was not able to prepare the herbal mixture. I thought I would simply walk into a compounding pharmacy here and have this done but I still have not found one suitable to do this work.
Tony
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I was asked about a source to buy tcm herbals. I have purchased some of them from East Earth Trade Winds, http://www.eastearthtrade.com/
It turns out that mixing up this stuf into a liquid or suitable form to make tea from is not simple and you will probably need a lab or whats known as a compounding pharmacy to make what you need. Naturally don’t take anything without approval of your doctor. Keep in mind that the studies they do on mice do not prove the stuff works on people and the dose is certainly different from human dose.
Best Wishes and good luck,
Tony
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There are many Chinese herbal formulas which have produced positive results for IPF in mice studies including but not limited to:
PRM, also known as Fei-Fu-Kang
Jinshui Huanxian formula (JHF)
Xuebijing (XBJ)
YKF Yangqing Kangxian Formula
Buzhong Yiqi formula
Yu Ping Feng formula
PROLUNG
PMO14 . PM014 is a novel herb extract derived from the herbal compound Chung-Sang-Bo-Ha-Tang (CSBHT).Is there any consensus which works best? I have been looking to try one but dont know where to start. My hospital, the Cleveland Clinic even has acupunturere and TCM prectitioners but aree not of great help in this area but I must say the pulmonary Dept is top notch.
Thanks,
Tony -
Thanks so much John! Please keep us informed with progress as I hope others using cold laser therapy will also do. This is a very interesting thread and could be the most important one to date.
For those looking for the Egyptian study Low-level laser therapy in chronic obstructive lung disease study referred to it can be found here:
http://www.ejbronchology.eg.net/text.asp?2018/12/3/317/239379
Best wishes to all,
Tony