[john styles]

@davidaswain , the Egyptian laser study is in google. google ” low level laser therapy in chronic obstructive lung disease”  it should come up. The research was done for a short period but done on about 200 patients, all had improvement.

[john styles]

Hi Lorraine, for the time the chiropractor spends over the lungs with the laser it should be no extra charge to do a little time over the acupuncture area. After reading your post I sent my chiropractor a e-mail with the Egyptian study attached because it shows the acupuncture sites for the lungs and asked if he could do  a little time over the acupuncture sites.  I was doing laser 5 minutes at 9 watts over each lung for 20 minutes but now I am doing 3 minutes over each lung at 9 watts so I should be able to add the acupuncture sites at no charge.  I was amazed to see improvement on my PFT because the previous PFT was done November around the 3 and I started laser Jan 17 and had the follow up PFT done around March 3 with the same tech who did my PFT tests last year. With steady decline on my PFT tests  I would have been happy with a small decline but to see improvement is amazing.  I also have a weird result, I walk daily, prior to laser last year I was doing a mile and using portable oxygen and had lost my increased saturation’s while walking outside, the saturation’s actually increase while walking outside. About two weeks after starting laser these increased saturation’s came back and I was walking  a 1 1/2 miles. Then about week 6 after starting laser  I lost the increased saturation’s while walking outside, I returned to where I was last year needing portable oxygen to walk. These increased saturation’s returned about 4 days ago.  No idea why. When I get up I walk 40 minutes inside and saturation’s drop to 88 from 91 or 92.  Later in the day when I do a mile walk they start at 91 or 92 then go up to 97, 96 and as low as 90.  No idea whats going on but I will take every improvement I can and I hope they stay this time.  Special thanks to Charlene that lets us post our results.

 

[john styles]

The Egyptian study was for a short duration,most patients  only 2 weeks but what was impressive was that everyone improved.  Dr Andy Hall has been using the laser on himself for 4 1/2 years and a few people have been using it for several years and now a lot of us are doing laser. I for one think there is good results with the laser. No decline is the result we are all hoping for and that takes time to confirm.  Which is better the acupuncture points or over the lungs? That is a good question. Now I have had a PFT after starting laser and had improvement on all FEV after 2 years of decline and have seen some improved energy and saturation so I am staying with Andy protocol but I wonder sometimes about doing the acupuncture points with the laser.

[john styles]

I to am watching my lung function tests,  last year I had steady decline with the last test November 13 2018. I wonder how much I had declined from November 13 to start of laser January 17.  When I did the lung function test March 7 2019 I had improvement  and sustained improvement on April 5.  Now I hope for the same results in October.

[john styles]

my two pulmonologist ignored the laser results. If it is not drugs they are not interested and they can not wrap their head around that the laser may work.  I have completed 12 weeks of laser treatments and 26 treatments and now I am doing one treatment a week.  I have had two pulmonary function tests by two different pulmonologists  at week 8 and week 12 of doing laser and both showed the same results. IMPROVEMENT! I was in steady decline last year, now I have sustained results,  so I am thrilled to have improvement. Saturation’s have also improved by 2 points.  Sad but with laser the reality is there is no big money to be made by the drug company’s who develop the drugs, also  the laser is not approved by FDA for lung treatment.

[john styles]

I have done 25 laser treatments, started with a treatment on Jan 17 then did next two weeks at 3 x a week and then 4 weeks a twice a week and then next two weeks at three times a week and last two weeks at twice a week and now scheduled for once a week. Results of a followup lung function test showed improvement. Saturation’s improved 2 points and energy has improved. I am walking 1  1/2 miles a day.  2  1/2 years ago I was  diagnosed  with usual interstitial  pneumonia.  Encouraging seeing improvement.

[john styles]

I have come to beleive there are different types of people in this world. Me and my wife when seeing someone ask for food on the side of the road want to help but do not want to contribute to alcoholism or drug addiction so we give the people who are on the side of the road a bag with a fast food gift card and new pair of socks and water. Now we have a new member ” Bud Henry” I think he would run these people over if given the chance. I will pray he has changed.  The whole idea of posting about laser is to here from other people that may try laser so we can learn of the long term effects. Bud is only going to be negative and tell us why it will not work. Maybe he has a issues. Bud drove the people on different website to create a facebook closed site for laser therapy and the site is growing daily.

[john styles]

I feel like were on wagon train live. We have Steve, Jack and myself doing laser with Andy Hall as the guide. I guess you can tell I like westerns but this is real pioneering, setting out on our own to get treatment. I hope everyone who tries laser posts results,  good or bad so we all get a good grasp of the benefits.  Some increase in saturation and stable lung function tests will be the goal.

[john styles]

I have to confess, I have a glass of wine a few times a week with my wife and I really enjoy our wine time.  The only time it bothered me is when my coughing got real bad and wine and salsa would set me off with a coughing episode, the laser has so far helped my cough to where I enjoy my wine. I have been told not to drink for 20 years but everything in moderation. My favorite quote “life s to short for cheep wine” Next time I have a glass I will toast everyone to have good health.

[john styles]

Hi Steve,  I use Alacin which is the extract in garlic that gives the benefits but only stronger without the taste and smell, I take it every day, costs $15 a bottle that lasts 3 months. I have not been sick since starting taking alacin Jan 2018.  Sounds like your mixture is working, may try it. I use honey and ginger tea.

 

[john styles]

When I started laser Jan 17 I was doing 3 times a week and then my saturation’s increased when doing outside walking to the point I did not need supplemental oxygen and I went to two times a week doing laser. Two weeks ago I developed a bad cough, worse then normal and was trying honey, ginger, etc,  but nothing gave me continued relief I also lost the increased saturation’s when walking to where I had to use my supplemental oxygen to do a mile and half walk, my saturation’s stayed the same when sitting or walking 100 feet.. When I discussed this with my chiropractor last Thursday he changed the head of the laser from wide to narrow, the next day my cough is gone, I still get a one cough now and then but no out of control cough, 99% better. I started back at 3 times a week this week doing laser.  What Andy Hall has said all along and what other people have reported is that the laser appears to stop the deterioration of the lungs. My lung breathing test was done by the same tech who did the last two tests, I had four tests last year and all values ( FVC, FEV1, FEF25-75, PEF ) all had deteriorated every visit last year, all these figures increased on this test done March 7.  I was hoping for stable results but was very pleased with the increase, at least no more deterioration. Time will tell where we go from here. This is especially important for me because I have liver disease fro cured Hep C three years ago, this means I do not qualify for a lung transplant without doing a liver transplant , (my liver is working fine) and can not take the drugs available.

[john styles]

To share an update with you, I had my pulmonary function test today, I had been declining all year with 4 pulmonary function tests done in last 12 months and each test showed decline. Today’s test showed no decline and showed  improvement on all .  good news. I have done 17 treatments, Last pulmonary function test done  in November and started laser January 17, I am very pleased and happy .  I lost my increased saturation’s outside two weeks ago, last week on Thursday my chiropractor changed the head on the laser from wide to narrow and the next day I lost my cough. My cough was real bad and now I hardly cough. What a wild adventure.

 

[john styles]

Here is the link to the newer Egyptian study published last year.  http://www.ejbronchology.eg.net/article.asp?issn=1687-8426;year=2018;volume=12;issue=3;spage=317;epage=322;aulast=Sayed

 

[john styles]

That is the challenging part, once you find a chiropractor with a class 4 cold laser tell them this disease is terminal and show him or her the post from Dr Hall and ask them to treat you. Worked for me.  The treatment of lungs by laser is not an approved treatment.  You will have to appeal to the chiropractor and want to do the treatment.

[john styles]

That is it exactly, I could not have said it better, to have hope again. Well hears hoping, I start my seventh week of laser therapy, time will only tell but I am optimistic. The small increases in saturation and the feeling better are great and I have more energy. My walking outside is strange, prior to last December and in June of last year my saturation’s would actually go up two points and then stay above 90 when walking outside  then in December 2018 I needed portable oxygen to walk a mile on setting of 5 and they would still go down to 78 and I had to stop 6 times to give them time to go back up, now after laser I can walk 1 1/2 miles with no portable oxygen.  I do not think the laser cures any scaring but am hoping it stops the progression of the disease. I had my last cat scan in December 2018 and I will not do one until this December 2019.  I have new pulmonary function tests scheduled for early March hoping they are stable because I was steadily decreasing every 3 months.

[john styles]

What Anne said is important. I think it depends are where one is with  this disease. I was going to not fly this summer as I have plans to go to the south of France, to do a walk I needed my larger oxygen concentrator on 5 and still dropped into the 78 range but now with the laser therapy I am doing I can walk without my oxygen concentrator. There is test that can be done to determine how much oxygen you will need when flying but it is expensive and not all big metropolitan area offer the test. I am in Tampa and was told I would need to go to Orlando.

[john styles]

I have two pulmonologists and one says fly and the other says do not fly that the airplanes are full of germs and if I got sick it would be real bad, I joke with my wife that she may be flying back with me in the cargo hole but she does not find that to funny. I flew from Florida round trip last year to Hawaii and also Milan Italy. No real problems but did need the portable oxygen.

[john styles]

Forgot to say altitude of where your coming from and going to is a concern. I live at couple hundred feet above sea level in Florida but when I go to North Carolina at 3200 feet its a big difference. I do not know how long it takes to get accumulated. Here in Florida I can sit, do a short walk around the house or sleep and I do not need oxygen but when I go to North Carolina I need oxygen at night and during the day.  Some times I go down to 2000 feet and I do not need oxygen.

[john styles]

The airlines are accommodating, you have to usually get your equipment approved before flying, usually under flying with disability on the airline website. The airlines only allow pulse units and require enough batteries to 1 1/2 times the flight and layover. I have also been able to plug mine in if there is a outlet by the seat, When I am at home I can sit with no oxygen needed but I am usually have a saturation of 91 to 93, but I need the oxygen when flying on a setting of 3. What is scary is the germs, take lots of wipes and wipe everything down.

[john styles]

That is great news from Peter and Jack, that is all I ever wanted was to let people know there is an alternative treatment that appears is working, and God bless Andy Hall for if he had not used the laser on himself we would not even be talking about the progress we are experiencing.  I can only hope more people do this and we have less deaths from this disease.

[john styles]

Update, I am still doing good on the laser treatment,  6th week. No side effects and improved saturation s and energy.  Correction needed on the Egyptian study, seemed I got the Sayeds confused but the study is real and encouraging but not as encouraging as Dr Hall study.

[john styles]

Hi Steve I do not experience anything different. I have noticed like the disease being real slow the progress is slow. What I did notice were increased saturation at times, again Andy is the expert. I may have customized his suggestions to the 20 minute session. I think the goal is no progression of the disease, what else we get is a bonus. I have pulse oxygen meters for my finger and I am always watching my saturation’s because I do not want to damage my heart.  What I was seeing prior to treatment was readings of 89 to 91 sitting, now I am seeing readings of 91 to 93 and sometimes up to 96.  No progression of this disease is the real goal.

 

[john styles]

Hi Lynn, I think my results were due to the laser but staying with Andy’s recommendation of class 4 laser and  my chiropractor is using a class 4 light force laser and is doing 9 watts  and doing a total session of 20 minutes, with 5 minutes on each lung on front and 5 minutes on back. Andy stressed the importance of the class 4 and Andy also noted the Egyptian study may not have used a class 4.  I have done 4 weeks of treatment and next week will be week 5.  I did 2 treatments the first week and 3 treatments week 2 and 3 and 2 treatments week 4  and the next few weeks will stay with 2 treatments and then one treatment a week. I still get out of breath on a hill or bending over or walking fast. I have been walking for 30 years and when I got this disease usual intestinal pneumonia a form of polminaary fibrosis I was walking 2.75 miles in Oct 2017, then the end of 2018 I was down to 1 mile with oxygen on a setting of 5. I get a boost from being outside in the fresh air. I can walk indoors and may need oxygen for an extended walk. I feel better and breath better. I think the expert on the laser is Andy and my chiropractor is not at Andy’s recommendation of 10 watts but I am doing more sessions in the beginning. I would say carefully make sure you stay with Andy’s protocol for laser.

[john styles]

The FVC reported on my spirometry test reported in percentage I am hoping it does not deteriorate any more. , Still doing better after  the laser treatments, I have completed 5 weeks of treatments and will be starting my 6 week.