Charles Dean
Forum Replies Created
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Hi Lori. My name is Charles Dean 76 years old and Have IPF diagnosed !/25/2020. From my hospital room bed I saw a Dr. speaking to my wife and daughter and after a few minutes I saw my wife get very upset and crying; I knew that was not going to be good news for me.
After consoling my wife The Dr. stepped just in side my room and I said ok what going on? his reply was you have Pulmonary Fibrous. I asked what amount of time I had; his reply was ” I’m not God, so I can’t say.” “It could be a week or a year.” He said some one one else would be talking to me and family as to my next course of action would be.
I spent the next 16 days in the hospital In the Palliative Care Ward. I was very sick from an infection that brought me to the Hospital in the first place. I felt I was at death’s door and all the family called. I had already been in silent prayer with God and I knew I was saved through the blood of my lord Jesus Christ. Jesus is my savior and strength to accept and live each new day he gives me and family to live.
I have been going down hill and each day I wonder will this be the last on. He has given me far more than I had expected and all the praise and glory to God. There have been a few moments of depression and sadness come over me but know this is not going to do me any good so I pray and and at some point in the day my depression is gone.
There is no cookie cutter way of handing this kind of news. But God loves you and hears you. May God place hands on you and give you strength to trust in him. Your brother through Jesus. Charles -
I was put on Predisone because I had not appetite and was loosing weight from not eating. This did help with my not being Hungary but don’t know if it has done anything else to help with cough or breathing. My wife was on Predisone for years and caused her to gain a bunch of weight because it made her feel Hungary all the time. She was on it because of a severe hive issue.
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I have shared this one other time but will be willing to share this again. I have IPF and on Hospice for over a year. My in-home nurse prescribed Morphine Sulfate oral liquid. This not only helps immensely with the cough but helps the lungs open up a bit more.
It does have one drawback and that is it causes constipation which I have to deal with by taking laxatives but the trade-off is worth it.
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I am 75 and was diagnosed with IPF just under a year ago and have had allergy problems for as long as I can remember. My nose runs like a faucet or totally plugged up. I have been using a mist nasal spray that helps and just recently started using a ” Neti-Pot ” and seems to help.
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Good morning Sue.
I have had this problem for over a year and used different sprays and stuff but nothing seems to help. Thought I would give this a try for the runny nose (Ipratropium Atrovent) I also found when I go to bed if I wear nasal strips that my runny noise stops and does open the passages but the minute I set up here comes the water works. I have tried wearing the strips during the day but does not seem to work.