Judy
Forum Replies Created
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Entered before finishing comment. Anyhow there was a mention regarding dry nose, which is irritating to say the least. Shortly after I started o2 24/7 i recognized that needed something but knew I couldn’t use Vaseline. A friend of my daughter has a young very ill son who has been on o2 most of his life. When asked she recommended Rhinase a soothibg nasel gel. I found it on amazon and it helps with dry nose. No petroleum ingredients. It helps.
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`living in Florida I change tge heat/air conditioning filter at least every 2 months and usually every month. The system works better and is much better for my lubgs. I also have air purifiers running 24/7 and change that filter as called for.
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There are so many seniors in our area that stores are really busy during that tine. My children don’t want me to go out, and I am lucky enough that they can get what I need. Must admit that I miss going to the store as staying is boring and I like to shop
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I have been sewing, reading, computer games and Other crafts to keep busy. Take each day as it comes. Not used to staying in.
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I was diagnosed about a year ago, but not conclusively. I have been on o2 since last year as my levels drop without it. I was on prednizone 10 mg. I was taken off that in January of this year to do testing see what the changes were with ct and pft.. Put on ofev but couldn’t tolerate the side effects. I was going to have lung biopsy, but tests reveled my lungs were not strong enough and risk to great. So I am back on predinzone 20 mg. I had become very weak on the ofev and am still getting my strength back. I still do not have a complete answer but I am coming to the realization if I can feel somewhat better that is where I am going to be.
I wish you better luck in finding your results.
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I have been an avid reader since i waa a child. I love different genres depending on mymood. My favorite author is J D Robb. I have been reading her for years. I also enjoy Lee Child, Michael Connelly, Karen Kingsbury among others. Since I have been so fatigued of late I have been reading alot.
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I too received the friend request and it went nowhere. Hlad to know about the spammers and that you are taking care of them. Really appreciate your work. I hadn’t thought about a possible spammer when I received I now know to delete. Many thanks
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Just started ofev this week. Some slight nausea so far. To soon to give much feedback.
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Thank you for talking about the he cramping. I too suffer from the chest cramping also cramping in my legs and feet. I had asked my dr regarding them. Didn’t know if it was related to my fibrosis or not. One dr thought it was a bruised rib. After reading the above i feel better about them. At least have a reason. For my chest area I usually just wait it out, taking an extra strength tylenol if needed. For legs and feet either walk off or use heat. I will say that I have a very high pain tolerance and can’t take most pain relievers due to allergies so I have learned to compensate.
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I am new to having pulmonary fibrosis. Been on oxygen for about 3 months. Before oxygen i was a couch potato. Now i can do things again. Prior to oxygen i had cramping on rib cage. I also have been experiencing leg and foot cramps periodically. After starting the oxygen, the rib cramping stopped until this week, when i started feeling pain on the left side. My Doctor thinks its muscle pain, but I don’t remember doing anything that could have caused. It is not bad pain just annoying. After reading about what you all are experiencing i feel more relaxed. I currently am not on any of the new medication. Currently taking low doses of prednisone. No side effects other than slight weight gain, which I hate. I have been going to pulmonary therapy and asking my Doctor to renew the prescription so I can continue for a while longer. I have really enjoyed reading all your posts. I am much older than you all so I guess I am fortunate not to have developed earlier. No idea how I got this as I did not work in a dangerous occupation nor was i a smoker. But it is what it is and I take one day at a time.