Thanks all great suggestions, I found a couple that are under 45db, so I am pursuing a provider that supplies one of them. I will go with another room and pass through tubes.

Looks like I will have to take oxygen at night. I currently use an oxygen concentrator if I am doing activities and the noise is loud and would create a sleep interruption. The provider says only 50’ away, and recommends I use ear plugs, great for home security lol. Any and all suggestions would be greatly appreciated.

Does anyone use a Sauna as part of their regular routine for IPF? What is the impact?

I take 150mg OFEV twice daily. I did not develop any bad side effects for 2 years, after that I had a lot of GI Problems. I learned that OFEV digests slowly and problems are minimized with protein, so I eat protein 3oz chicken before I take it and then I eat protein every 3.5 hours throughout the day. I take fiber daily (Metamucil) and…

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Sorry, typo, choose the right protein, a slow digesting protein such as poultry breast meat, nut butter, etc, because OFEV is slow digesting.

I agree that different centers have different criteria. The Mayo Clinic told me 74 was the oldest the did. The problem I have is how can our government allow medical institutions, who live off federal subsidies, openly discriminate based on age. Their discrimination can result in premature death of patients, isn’t that a conflict of their…

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Somewhat, it definitely is a bit confusing. The Inogen One G5 produces a maximum of 1,260 milliliters (ml) per minute or 1.26 liters per minute (lpm). It has 6 settings, so setting 1 generates a little over .21 liters per minute, level 2 generates .42 liters, and so on increments of .21 1liters up to a maximum of 1.26 liters. The numbers on…

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Is the trial for Bexotegrast?

So I am on the 6am and 6pm OFEV medication times. For my morning dose I have a 3oz chicken breast or thigh and a tablespoon of potatoes (baked or mashed), I prepare 3 days worth at a time. I take my OFEV 1/2 way through the meal with a full glass of water. At the 6pm I just make sure I have a slow digesting protein (chicken, lean red meat,…

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My pulmonologist suggested I add plants, All plants absorb carbon dioxide through a process called photosynthesis, using sunlight to convert carbon dioxide and water into sugar; some common examples include: <mark style=”font-family: inherit; font-size: inherit; -webkit-text-size-adjust: 100%;”>snake plants, aloe vera, jade plants, areca…

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Sorry to hear about your situation. I have a gastroenterologist that I meet with to discuss any gastrointestinal side effects I have had with OFED. She has been incredibly helpful, I think we to often rely on our pulmonologist to be our go to person for all ailments. They base their gastro advice on other patient feedback, seminars and…

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I changed doctors recently and am on a trial. One of the senior physicians on the trial was talking with me and I mentioned the diarrhea issue with OFEV. He indicated that I needed to eat at least 3 oz of protein with OFEV, he said that the med breaks down slowly and I needed to have a protein that also broke down slowly. He suggested…

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I am looking at purchasing a home with a ventless natural gas fireplace. I was wondering if anyone with IPF has one and what their experience has been. Thank you.

I have been dealing with the dreaded diagnosis of IPF for 4 years, been taking (OFEF 150mg 2x a day) from the start. My doctor told me after treating me for over three years, he thought I should switch to a center that had more experience with IPF. He is a board certified pulmonologist and the Department Head, but he said “Frankly there are…

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Anyone involved in the Tvoldi clinical trial and on Ofev? I an having abdominal cramping and trying to determine which drug is causing it.

I have had IPF for 3 years and been taking 150mg OFEV twice a day since I was diagnosed. I have been doing all the normal testing, liver, lung function, X-rays and CT scans. A month ago I met with my doctor to review the results and he informed me that I had progressed to stage 3, and he had run out of options and was going to refer me to…

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Hello Margo,

Understand your concerns. Saying that, Ofev is an excellent manager, he will learn what he can eat or what will have a reaction with Ofev, it is a bit unforgiving. He needs to keep his weight up, so if he can eat jerky and have no adverse reaction, let him, my opinion. As far as travel, I am planning a trip that requires air…

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I did have an adjustment period, my doctor prescribed an enhaler, Albuterol Sulfate, I used it for a few weeks and then it settled down and I only use it on difficult days.

Welcome, and bless you and your journey before you. OFev is an adjustment period, learn what foods work for you, OFev will tell you what doesn’t. Talk to your doctor about Rx strength Omega 3 fish oil, there are great research studies that describe the positive impact it has. We are all here to support you Dan, just reach out.

Don

I have taken RX strength omega 3 fish oil during my IPF ordeal, as well as Ofev. The progress has dramatically slowed, I would definitely recommend taking it. If your DR prescribes it , most likely your insurance will pay and you will get highly refined RX strength. A decent…

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I was in an emergency clinic yesterday for chest congestion and chest discomfort. The PA prescribed me a zpack and suggested that I boil equal amounts of apple cider vinegar and water and bring to a boil, reduce to a simmer and inhale it through my nose for 10 minutes. He claims it cleans the respiratory system to includes any congestion…

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My doctor immediately discussed the medications, I choose OFEV because of its successful track record. He explained the possible side affects and In experienced many, most of which I caused myself by not avoiding foods that I should have. OFEV is unforgiving, follow the rules and you will adjust. Learn from others experiences on the forum,…

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I have had Pulmonary Fibrosis for 2 years. I at times have breathing difficulties, my doctor put me on a Abunzinal inhaler twice a day, and if I experience difficulty I can add a third. It does the trick. Upon diagnosis, my Pulmonologist put me on OFEV 150mg 2x a day. It did take some adjustment, however I followed the routine, took…

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I am 72 years old with IPF taking OFEV. I have muscle aches and pains primarily when I am not active. Do to some side affects I just sit around, read and watch TV, and it is absolutely the worst thing I can do. I got past that phase and make myself walk, do things around the house, most important be active.

Interesting, I made oatmeal cookies with cinnamon and raisins, and it did the trick for me, I can see where the cinnamon raisin bread would work as well. I cut the white sugar by 2/3 and increased brown sugar by 1/4 cup. I used the Quaker Oats recipe. I eat a couple abd take my OFev and then a third one, and I am good to go. It is all about what works

I was given fosfomycin

I was diagnosed with IPF 2 years ago. My doctor recommended OFED and I began taking it twice a day. I have to say it was a learning experience, OFEV is unforgiving, if I ate the wrong thing I paid the price. Saying that I learned from experience and others on the forum, I am stable and my numbers are good. I have not had to rely on…

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https://www.cedars-sinai.org/newsroom/zinc-found-to-play-an-important-role-in-lung-fibrosis/

i have 11 mg in my multivitamin I am adding a 15mg 2x a day

I have been on on Ofev for 2.5 years.  My last appointment was in January 2023 and the doctor was very surprised at the very slow rate of growth, i a still at stage II for over a year.  He moved me to an annual appointment, so in January 2024 I will have a report.  I feel good, I still work in the yard, and took the high Altitude test (HASP)… Read more

Crackers and peanut butter with 9pm Covid , English muffin and vegan sausage with pill at breakfast.  Like other posts, eat 1/2 food take pill then other half.  Stay away from acidic foods.   I miss my Bloody Mary.

I am scheduled to have Hernia surgery in two weeks.  I take OFEV twice a day, should I skip the night before?

Obviously I will skip the morning before surgery because I will not be able to eat,