Joan E. Lynch
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I have been on Gabapentin for almost 2 weeks and it definitely helped my cough. I hope it continues to do so. I do have a mucus cough once in a while. But all in all I am feeling really good right now in spite of my old age which is also terminal.
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Charlene, I have no idea if the sarcoidosis caused my husband’s heart problem. I really don’t think so as he had a coronary bypass quite a while before the sarcoidosis diagnosis. But who knows if it did, the doctors never told us that. I do know that he almost died from too much calcium in his blood and was monitored closely for a long time while on prednisone. We were naive and optimistic and did not know it was serious. I hope your friends take care and the salt works for you. I live by the Ocean I think it helps my breathing a lot.
On another note, I think I got my PF from a Reclast Infusion for osteoporosis in 2014. I had a bad reaction which lasted almost 5 months. The doctor thought It was my heart and was sent for many tests. I wasn’t diagnosed with PF until November 2018, but I don’t think the doctors believe I got it from that. Thanks for your kind words…………J
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My husband got Sarcoidosis after major surgery on lymph nodes in his chest as a prevention measure after testicular cancer. They diagnosed his symptoms later as too much calcium in the blood and was treated with prednisone for several years. Pulmonary Fibrosis was never mentioned. He did not have trouble breathing. He passed away from heart failure in 2012 after major heart surgery in 2011
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I have had a nasal drip on and off for years. Mostly on now. I use Flonase every morning in my nose as I think I also have allergies. I lost my taste a while back but the Flonase helped that. I also have a problem with my voice when trying to talk it is most annoying I agree. I started on Gabapentin a week ago and I am feeling much better with my dry cough. Also, I find good over the counter cough drops help. I think all of the problems we are having are connected to IBS. Just need to find what works for you.
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Hi Charlene, My doctor prescribed Gabapentin went I saw him on Friday. It is 300 mg a day (100 mg 3x per day). I felt a little dizzy after the second dose. I will have to give it more time to see if it helps my cough. I would like to know what off-label means also…………….J
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I was on gabapentin for several years due to nerve pain from shingles while I was living in MA. Went off when I felt better from the nerve pain. My dry cough started some time after that. I have since moved to Florida. I am seeing my pulmonologist on Friday and will ask him about putting me on. Will let you know how it goes.
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I do not think of myself as being disabled. However, my daughter-in-law said I should get a handicap placard. When I am with my family, they let me off at the door usually. When I am alone I try to park close. I am 87 so am battling old age as well as pulmonary fibrosis. I was formally diagnosed in November 2018 but back in 2014 I was having some breathing problems they said I had what looked like ground glass in my lung. However, after that I seemed to be fine except for a dry cough. I am on oxygen at night to protect my heart but do pretty well during the day. I am thinking of getting a handicap placard and use only when needed.