John Kane

[John Kane]

I just started looking into wrist worn sensor watches. Whiting s is the only one that says they are FDA approved for the SP02 sensor they use.

More research to be done.

[John Kane]

I have had IPF for about 3 1/2 years and take Ofev for it. My wife and I have had the two Covid shots and one booster, last year.

Three months ago we both tested positive for Covid. We both had fatigue(on top of what I already have). My wife had heavy congestion and I had heavy GI issues. Don’t know why we were different but at least I did not get the congestion. These lasted for about two weeks, I lost 7 pounds, not the diet plan I would recommend though. Our MD had us take Paxlovid which greatly helped. I don’t know how it would have gone if we had not had the Covid inoculations.

 

 

 

[John Kane]

It took me about a year to minimize the Ofev side effects. What helped me the most was giving up coffee. It seems that the acid, not the caffeine, was the major culprit.
Diet wise, tart or sour tastes, not spicy, would bother me. Dairy does not bother me at all.

Took a while to figure all this out but we traveled when we could.

 

[John Kane]

My mother died of IPF at age 72.  Was diagnosed 3 years ago and am now 72.  Am the oldest of 4 children, and the only one left. One of them died of IPF.

[John Kane]

I was diagnosed in May of 2019. My wife was with me for the post testing discussion with the Pulmonologist. We agreed that it would be best to tell both of our adult kids right away. Very glad that I did and have updated them after each testing testing since then. At this point our friends and relatives also know, the support has been unbelievable.

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