Kathi
Forum Replies Created
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I’d love to be at this Zoom but I’m having a house full of people and a big meal for our American Thanksgiving holiday. Will there be a video replay available? Thanks.
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I heard someone once say they use a baby stroller for their oxygen. They fold up easily (some of them!) and hold a lot of tanks/POC and supplies. I have been looking for a stroller so I can put three tanks in it and go walking around the lake on nice weather days. I think it’s a brilliant idea!
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There’s a FB group for “Pleuroparenchymal Fibroelastosis (PPFE) Support Group” that I hope PPFE patients feel helpful specific to PPFE.
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I didn’t get the PM with the link to the recording. I also see my PM to you didn’t go through. I cannot make sense of this forum somehow. If possible, please PM me the link to the recording. Thanks!
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I sent a PM with my email address but I’m not sure you got it. I find this whole forum so cumbersome and not always sure my messages get sent. Can you let me know if you got my PM with my email address?
Thanks
Kathi
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I know it’s off topic, but I’d love to hear more about what you learned at your conference on food choices for health!
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Have you heard if there is there anything in the works yet for a nebulized form of OFEV?
