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Pleuroparenchymal Fibroelastosis (PPFE) and rare lung diseases
Hello!
I was diagnosed with Pleuroparenchymal Fibroelastosis (PPFE for short), it’s rare and difficult finding others with it, however I have found a small group. I was wondering for people who are diagnosed with disease where you go to find information on doctors who treat that disease? I know Google is a resource, but so much to weed through there. Just wondered if anyone found some place where they can find doctors treating their actual disease.
Thanks!
Kathi
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