Forum Replies Created

  • MaryLou Ward

    Member
    November 14, 2022 at 12:59 pm in reply to: New Zoom meeting – taking the bull by the horn

    Yes add me to your zoom meeting/discussion.  My breathing is such that it takes me a while to say something…. Diagnosed 11 years ago now on 6 lpm 02.

     

  • MaryLou Ward

    Member
    July 28, 2022 at 2:47 pm in reply to: Good Saturated Oxygen Levels Yet With Labored Breathing

    I do the same thing but my respiratory rate only goes up to 30.  I try to slow it down by doing the breath hold and it does come down. Something sounds like your heart might be effected.

  • MaryLou Ward

    Member
    August 27, 2021 at 12:04 pm in reply to: 4 common coughing triggers for IPF

    the triggers set off my cough also.  I boil a herb, Gus Lou Shi, for my cough.  Sometimes it helps and sometimes it doesn’t.   Thank you all for your comments on a cough.  I don’t feel as along in the world.

  • Hi, I’m marylou and I have had IPF for 3 years or diagnosed.  I too saw the Wei article  and got there soup recipe. Then decided to find a herbalist locally because the Wei location was 350 miles away.   I started on the basic soup then my herbalist started making little changes to fit me.   This was about 1 1/2 year ago.  About a month ago I started only drinking 1/2 the dose a day.  Then a week ago I got this deep cough with lots of secretions.  I called my new pulmonary guy and he says I have chronic COPD.  He is new. He sent the diagnosis on email.   Well I know better.  I then increased my herbs to the full dose and took another herb that really stops my cough.  After two days of my increasing my herbs I’m feeling better and my cough is down to the normal chronic cough.  I may be unusual but I like to see the herbs so I boil my preparations.  This is just what happened to me.  The herbs haven’t cured me but they make my life better.

  • MaryLou Ward

    Member
    November 26, 2020 at 2:23 pm in reply to: Choosing Gratitude This Thanksgiving

    Thank you Charlene for your wisdom.  I have gotten so much information from this site. It’s wonderful.  All the people writing to you have been an inspiration.

  • MaryLou Ward

    Member
    November 10, 2020 at 7:39 pm in reply to: Coronavirus Being Breathed In Through POC

    First time commenting. I’ve had IPF OR DIAGNOSED for 3 years and I’m 76 yo.  I was thinking I would put a mask over the import of my simply go concentrator.   I treat my concentrator as a pet, I call him Spike.

     

  • MaryLou Ward

    Member
    November 10, 2020 at 6:49 pm in reply to: Coronavirus Being Breathed In Through POC

    First time commenting. I’ve had IPF OR DIAGNOSED for 3 years and I’m 76 yo.  I was thinking I would put a mask over the imput of my simply go concentrator.   I treat my concentrator as a pet, I call him Spike.

     

  • MaryLou Ward

    Member
    July 30, 2020 at 3:07 pm in reply to: Lifting COVID-19 Restrictions: How Do You Feel?

    Hi, I have read so many of your articles and so glad your out there. Bless you. I’m not secure with lifting restrictions. But I understand why.   I will wear a mask with others until my last breath.  This disease has changed where I go and when.  I enjoy being at hometo do the manny things I have always wanted to do.   Keep up the good work.

  • MaryLou Ward

    Member
    November 16, 2021 at 4:07 pm in reply to: WEI Institute Natural Care of Chronic Lung Diseases

    Your wife knows herbs.  Wish she was mine. Lol

  • I still boil and drink my herbs.  I’m declining but my lungs are moist and I don’t have the dry cough, which I’m happy about.   Sorry no cure found in herbs.  I’ll keep going though.

  • I do take NAC per my md recommendation. The other two I will check on.  Thank you for the information.  I’m working with a herbalist and we keep an eye on my prescribed meds and the interaction with my herbs.

  • Hi Steve

    i had read about the WEI and decided to find my own herbalist.   That was two years ago.  I’m no means cured but my lungs are moistened and my dry cough is helped.    I did take the WEI soup recipe to my herbalists and he made it to me specifically.    IT has taken a while to get my own recipe but I feel I’m nourishing my body with the herbs.   They came before modern medicine.

     

  • I do have stomach upset issues but found if I have something in my stomach when drinking my herbs.  I boil my own herbs.  I like the smell and taste.  I maybe strange.  Lol

  • I buy my herbs at my local herbalist and it’s about $400 a month.