Forum Replies Created

  • Pam Maguire

    Member
    May 2, 2023 at 6:37 am in reply to: Doctors making little sense despite severe symptoms

    Hi Gavin,

    I am also in UK, my husband has IPF.

    I’m so sorry your not being looked after in your area, I know the feeling of shouting and no-one listening.

    Can I clarify, your lumg function  FVC was 20% or you have lost 20% ?? My husbands FVC is 66% and was sent for a full oxygen assessment- was determined he didn’t need it but ask for and oxygen assessment see if you get anywhere…

    Take care

    Pam

  • Pam Maguire

    Member
    March 27, 2023 at 10:01 am in reply to: Life span

    I also believe herbal remedies may help. I am keeping a keen eye on trails taking part in Australia at the moment safety testing on a new product designed to block Interlukin-11 and in mice it stopped and reversed scarring. This is my hope for my husband and PF community

  • Pam Maguire

    Member
    March 24, 2023 at 2:54 am in reply to: Life span

    Hi Kim, I’m interested what your doctor said about the reduction in shadowing? Thought current medications available only slowed scarring not reduced? Or is it a different thing?

    Pam

    Xx

Report

Harassment or bullying behavior
Contains mature or sensitive content
Contains misleading or false information
Contains abusive or derogatory content
Contains spam, fake content or potential malware

Block Member?

Please confirm you want to block this member.

You will no longer be able to:

  • See blocked member's posts
  • Mention this member in posts
  • Invite this member to groups
  • Message this member
  • Add this member as a connection

Please note: This action will also remove this member from your connections and send a report to the site admin. Please allow a few minutes for this process to complete.

Report

You have already reported this .