Forum Replies Created

  • eileen-d-koster

    Member
    February 12, 2021 at 10:26 am in reply to: WEI Institute Natural Care of Chronic Lung Diseases

    Have these herb from WEI or other sources been okayed by your pulmonolgist?

    Eileen Koster

  • eileen-d-koster

    Member
    November 12, 2020 at 3:19 pm in reply to: Portable Oxygen Concentators

    Hi Pete,

    If you live in the U.S. or Canada

    Call Robert Scott at Inogen One. If you have Medicare you can get a concentrator

    thru your Pulmonologist and medicare.  Either way you will need a precription for

    a concentrator as O2 is considered a medicine. I don’t have his ph number but you

    can Google InogenOne.

    Best, Eileen

     

  • eileen-d-koster

    Member
    April 29, 2021 at 5:25 pm in reply to: Working after transplant

    Dear Don, I had a right lung transplant on Mar 25, 2021. Before I was diagnosed with IPF in 2016 and went on supplemental O2  (3>4 with exercise) in June 2020. In late Sept 2020 I started the test to get on the transplant donor list.

    I live in Los Angeles and receive my care at Cedars Sinai. I am 75 in in good health and weight erxcept for IPF. I went on there active transplant list in Feb 2021 and got the call on Mar 24 2021 for the right lung transplant. They would not do a double because of my age. Let me tell you it has been a miracle. I was uncomfortable for 2 weeks in ICU and my hospital room but my pain was never above 4. I had a very positive mind set. I had a caregiver who I’ve known for many years. Today as I write this I am driving and living independently in a 2 story home. I continue to thrive and take many many meds that will keep me going.

    Best of luck on your journey and feel free to reach out to me and others.

    Eileen Koster