Forum Replies Created

  • Robert M

    Member
    August 28, 2021 at 11:38 am in reply to: Concentrator nasal cannula storage

    For the home concentrator I bought one of those removeable plastic wall hangers at home depot.

    In the morning I just hang the cannula on the hook I stuck to the concentrator.

    They have a little plastic pull that will remove the hook when no longer needed. Works great.

    Haven’t figured out anything for the portable, still drags on the ground.

  • Robert M

    Member
    August 28, 2021 at 11:31 am in reply to: Passing along what is working for me.

    I started taking OFEV 150 2x per day in April 2018. Most serious side effect was violent diarrhea 2-3 times a day.  I had never had an issue with that and did not know how to deal with it.

    Took many medications on doctors advice but to no avail. Last year, early 2020 started with Immodium Gelcaps, not the generic.

    One a day started to help, about a month later still some issues, doctor said take one in morning and one in evening if needed.

    I cannot say enough what a relief it has been not to have to schedule my daily travels around where the nearest clean bathroom would be. Especially after covid hit and many were closed.

    I am not advising anyone to take it only that it works for me 95% of the time. It is on amazon, I  think $11 for 24.  They are a little difficult to open each one but worth the effort (for me).

    Best of luck to anyone with this nasty side effect.

     

  • Robert M

    Member
    August 17, 2021 at 7:04 pm in reply to: Spotlight on the Immunosuppressed.. Finally.

    Did the same yesterday, walked into Walgreens and got the booster. It was their first and they had an issue figuring out the paperwork but all ended well.

    A little sore today and lethargic, same as second shot.

  • Robert M

    Member
    August 28, 2021 at 11:12 am in reply to: Spotlight on the Immunosuppressed.. Finally.

    Pre. But unlikely because of lung cancer history only 2 years clear and weight.