Forum Replies Created

  • Smokey

    Member
    January 23, 2019 at 9:59 am in reply to: Dry Skin Relief for Patients with PF.

    Watching this one. Something that helps me is ‘Bag Balm’ that I find in women’s makeup and beauty supplies. It is very thick to apply so takes some work. I put it on my hands because they crack and bleed and it usually works.

  • Smokey

    Member
    December 12, 2018 at 12:09 pm in reply to: secondary symptoms related to IPF

    Welcome Martin!

    To a great forum.  We are glad to have you with us!

    I too have crackling in my lungs according to my doctors.  Normal?  I don’t know, I guess so.  It does seem to come and go or maybe the doctors just don’t mention it all the time.  No one has ever explained it to me but I believe it is probably the parts that have stiffened up trying to move or stretch.  Hopefully someone wiser that I will explain it to us.

    Smokey

  • Smokey

    Member
    December 11, 2018 at 2:20 pm in reply to: The “Sunday Scaries”

    Hi Charlene!

    I’m sorry to hear of the Sunday scaries that you you are now having to fight!  My prayers are with you.

    I too have had them, although I didn’t know they had a name.  At that time I had a wife who was developing Alzheimer so I really couldn’t do anything to get out from under the problem.  What developed was during a knee replacement the Dr. damaged the nerves in my spine.  I was able to work 3 more years before  I became disabled.  At which time I became qualified for full disability and began receiving my full social security.

    Do you have anything like this in Canada that you could take into consideration to help you in a “after job” situation.  Charlene just don’t get so tired and down that you make rash, unprepared decisions.

    Smokey

  • Smokey

    Member
    November 30, 2018 at 9:31 am in reply to: secondary symptoms related to IPF

    Hi Charlene!

    I’m sorry that you are having the anguish with your decision on work, but as I’m 73 I understand what your going through.  Looking back I wish I had not put so much of myself into my work as when it is all said and done, they don’t care.  They just want more.  And I have noticed that there is more and more politics in the work places than there used to be.  And it is terrible that most all that we need in the temporal world costs so much to cause us to be debt ridden.

    And I’m glad that you feel to express yourself to me as I sincerely do care.  You will be in my thoughts and prayers.  One of the hardest things I ever did was quit a job I hated “before” I had another job lined up.  But it all worked out in the end.  In fact I was called and offered a better job that very night when I got home.  Things will work out whichever way you choose to go.

    Smokey

  • Smokey

    Member
    November 27, 2018 at 10:24 am in reply to: secondary symptoms related to IPF

    Hi Charlene!

    I hope and pray that you are having a great day today.  I would like to add my thanks and praise to Rene’s.  You do a wonderful job for us in keeping us updated and informed with such a happy positive attitude.  I for one always feel much more upbeat just reading what you have to say each day.  Thank you very much!

    Smokey

  • Smokey

    Member
    November 6, 2018 at 12:17 pm in reply to: Recognizing the Flu is Important as a Patient with PF.

    Thank you Charlene!  Great subject as this will be my first flu season since being diagnosed. I’m watching!!

  • Smokey

    Member
    September 6, 2018 at 2:56 pm in reply to: Portable oxygen

    Hello Charlene!
    Just a couple of things to correct. :>) I purchased the POC from Enron and was past the 30 day limit. But as it was so new I assumed they would possibly buy it back. Wrong! I would very much appreciate any help, suggestions, or advice that you might have for me to sell it. I would like to get 80% of what I spent out of it. I don’t think that would be out of line, but if it would please tell me.

    Thank you and may the Lord bless you.
    Smokey

  • Smokey

    Member
    September 4, 2018 at 2:09 pm in reply to: Portable oxygen

    I own the Inogen G3 with 3 batteries. It is a pulse operating machine. It will provide up to 5l but will not provide continuous flow.It is nearly brand new as I purchased it in March or April of this year. After several stress tests my critical care doctor changed me to continuous flow as I was not getting enough oxygen on pulse. I called Energon to see if they would buy it back but was told my 30 days was up and so there was no return. $3500.00 down the drain.

    So, whatever you purchase make sure it will meet her needs no matter what the future brings. Good luck!