Robert B

[Robert B]

Randy, I’m only on 3 but I coughed all the time and had 7 lung infections in a year. My pulmonologist decided to try me on 10 mg of prednisone daily and 250 mg of Azitromiacin (?) three days a week. It has been almost two years and I’ve not had an infection nor do I cough all the time. I rarely cough. I even got by after having Covid. It changed my quality of life. I always used large does of steroids for recovery but haven’t needed to do that since I made the change. I thought I’d let you know. It sounds like it is difficult maintaining quality.
Bobby Bell

[Robert B]

I was diagnosed with IPF in early 2000’s. I’ve been on oxygen for 19 years. Two years ago, my pulmonologist prescribed Trelegy as a once a day inhaler, and azitromiasim (?) three days a week and prednisone (steroid) once a day. Before these I coughed all the time and had several lung infections. I’m on 3 liters and function well most of the time. I stay active with people and do as much good for others as I can. Plus I play golf twice a week. I don’t have near the strength I had years ago but I’m committed to never giving up to doing nothing, even though I seem to do nothing a lot of the time. I’ve got other physical problems but my attitude is still the most critical part. Bobby

[Robert B]

I was looking at double lung transplant but due to Covid they were reluctant to push it through. Although, I was vaccinated, I ended up with Covid. Then shingles, and now gastroparesis. I can’t even process food.
I’m no longer considering a transplant. I’m doing ok on 3 liters of oxygen and don’t need more problems.

[Robert B]

I’ve been taking 10 mg of prednisone for two years. I coughed every day for many years. I also take aurithromiasyn (?) 250 mg m-w-f. The two together have improved my breathing tremendously. Years ago I was on very large doses and gained 45 pounds in two months. I quit taking it but it might have saved my life. Bobby

[Robert B]

I took prednisone in 1973 and gained 45 pounds in two months. I quit taking it but it helped my lungs. Years later, it was used as a rescue drug when I got an infection. I’ve been on oxygen for 19 years. I coughed all the time until two years ago when the pulmonologist put me on 10 mg daily send an antibiotic three times a week. I lost my cough and was able to exercise. I’ve gained about 10 pounds but I had lost 70 before that. I’m worried about the long term effects of prednisone but I’m not sure my life would be as good without it. Plus I had Covid and lived through it. I was glad I got the vaccination before I had it and will get the booster.

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