As a young adult living with a chronic lung disease, I’ve heard horror stories of general physicians (GP) and specialists failing to listen to their patients. In the rare disease community, this is a common complaint by patients, and many of us wind up supporting one another when frustration boils…
Living With IPF — Charlene Marshall
Charlene Marshall is a fiercely independent 30-something-year-old who can’t sit still. She loves coffee, wine tasting, playing with her dog, and spending time on the beach with her family. She’s a lover of all things travel, and never passes up an opportunity for a dip in the ocean! A proud Canadian, Charlene was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016 after 13 months of investigation into sudden shortness of breath, a chronic cough, and unusual fatigue. IPF has forced her to slow down, but she’s slowly learning the value of quality versus quantity in everything she does.
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Exercise is important for people with chronic illness. But as someone living with idiopathic pulmonary fibrosis (IPF), a disease characterized by progressive scarring of the lungs and difficulty breathing, I know working out is easier said than done. I’ve also found some strategies that make it easier for me.
Most of my friends and family members would say I am an open book about my chronic illness. After the initial shock wore off from being diagnosed with a life-threatening lung disease at 28, I decided to share my story through writing. Serena Lawrence, the late senior managing columns…
I can’t recall how many weeks we’ve been enduring physical distancing unless I actually sit down to think about it. The days seem to blur together, and the time at home seems similar today to what it was yesterday, and to the days before that. However, if this is…
As I sit down to write this column, my heart feels heavy. As a Canadian, I can’t help but shed tears for the senseless act of violence that occurred over the weekend a few provinces to the east of me in Nova Scotia. A seemingly respectable man in a…
It’s fair to say that none of us really know how to navigate our days during this COVID-19 pandemic. I have never lived through anything quite like this, and would guess that many of you haven’t either. The days are long with a lack of routine and structure, and…
When I was growing up, my mom used to say, “Charlene, there is something to be said about routine!” Usually she was referring to my sleeping habits: I would stay up far too late and then be tired the next day. She always told me that if I got into…
The news of organ transplants being paused at several medical centers around the world amid the COVID-19 pandemic is deeply troubling. As a patient living with idiopathic pulmonary fibrosis (IPF), I’m concerned, because ultimately, a lung transplant will be the only thing to save my life. I also…
It’s hard to focus on anything other than the COVID-19 outbreak happening around the world. News reports share grim statistics and other daily details about surges in new cases, the climbing death toll, and stories of those who refuse to comply with important social distancing practices. Social media…
Like my readers on Pulmonary Fibrosis News, I’m doing my best to stay abreast of the global COVID-19 outbreak. With that said, I am finding it pertinent for my mental health to take breaks from social media and news reports which are inundating us with information surrounding this…
I am writing this from seat 17A on a flight home from California. I see nothing but fluffy white clouds and sunshine from up here, and I can’t help but wipe a tear from my eye. I have completed another incredible trip despite living with idiopathic pulmonary fibrosis (IPF). When…
Since being diagnosed with idiopathic pulmonary fibrosis (IPF) nearly four years ago, I’ve learned a lot about chronic illness communities. Additionally, I’ve learned about the many professional roles that affect patients, families, and caregivers living with chronic illnesses. All of these roles are important in helping those of us…
I am a believer in the power of sharing stories. I believe that our narratives can shape and inspire others. As a columnist for Pulmonary Fibrosis News, I hope to help others by sharing my story about living with idiopathic pulmonary fibrosis (IPF) as a young adult. “When you stand…
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