Co-caregivers: Remember You’re on the Same Team

Last week, I wrote about the benefits of having multiple caregivers during my mom’s recovery from a double-lung transplant. My dad, Aunt Shari, and I shared the responsibilities so that Mom had the best care from each of us. Preventing caregiver burnout and having someone else who…

A large number of people with pulmonary fibrosis (PF) were unaware this disease even existed before they were diagnosed. I was diagnosed with idiopathic pulmonary fibrosis (IPF) in December 2014 and received a lung transplant a year later. Doctors speculated that I had been living with IPF…

I want to increase awareness about the impact on those of us with lung disease when people smoke in public places. Since being diagnosed with idiopathic pulmonary fibrosis (IPF), I’ve twice inhaled secondhand smoke at the entrance of a grocery store. One of those times, I was rushed to…

Surgery is the most effective option to treat lung cancer in people with less severe idiopathic pulmonary fibrosis (IPF), a Korean study has found. For IPF patients who have a poorer prognosis (more advanced GAP stages), researchers recommend accounting for cancer clinical stage and estimated tolerability…

Esbriet (pirfenidone) shows similar benefits for people with idiopathic pulmonary fibrosis (IPF) in real-world settings as it does in clinical trials, a new study shows. “Pirfenidone in real life: A retrospective observational multicentre study in Italian patients with idiopathic pulmonary fibrosis” was published in the journal…

I feel vulnerable writing about this topic, but if this column opens the door for conversation, my discomfort will be worth it. I recently had a conversation with one of my colleagues about having kids. She is healthy, but I am living with a terminal lung disease called idiopathic pulmonary…

The Pulmonary Fibrosis Foundation (PFF) and Three Lakes Partners are joining forces in the fight against pulmonary fibrosis (PF), according to an announcement to mark National Pulmonary Fibrosis Awareness Month in September. Three Lakes Partners will provide funding to PFF to help the foundation reach its goals of…

My name is Michael Morale. As director of multichannel content for Bionews Services, my job is to bring engaging multimedia content to all of our rare disease communities. I would like to introduce some of the resources available to our Pulmonary Fibrosis News forum members, as well…

Before my mom had a double-lung transplant, my dad was her only caregiver. Holly, my mom, was reasonably independent until a couple of months before being admitted to the ICU. Ed, my dad, was her companion and helper, encouraging her to walk for exercise and helping her…

Processa Pharmaceuticals will explore and further develop the anti-fibrotic, anti-inflammatory compound HT-100 as a potential treatment for rare fibrotic-related diseases in adults, including focal segmental glomerulosclerosis, scleroderma, and idiopathic pulmonary fibrosis (IPF). The company announced that it has acquired the exclusive global rights to develop…