Since being diagnosed with idiopathic pulmonary fibrosis (IPF) in early 2016, I’ve had to ask for or accept help on multiple occasions. I am always appreciative of offers of help following an acute event such as an exacerbation, illness, or prolonged hospital stay due to my poor…
The Pulmonary Fibrosis Foundation (PFF) has launched its Oxygen Information Line to provide information and resources to help people using supplemental oxygen and their caregivers. Using the line, people can get reliable advice about which oxygen delivery system to use, how to manage flow settings, and how to ensure safety.
For patients living with a life-threatening illness, adjusting to change and reevaluating our abilities is an ongoing task. This is because the progression of our disease causes physical limitations and restrictions and our values may change over time. When our physical capabilities change, it is important to consider…
Mediaplanet, a content marketing company, recently launched a “Personal Health” campaign that helps to raise awareness of different forms of lung disease, from pulmonary fibrosis and cancer to asthma and chronic obstructive pulmonary disease. According to a press release, the campaign — which covers other chronic diseases…
e With summer in full swing, I’ve decided to enjoy the special things about the season. I’m trying to be intentional about relishing the good things, instead of going into automatic mode — just surviving every day. Summer food Boysenberry Cobbler (Photo by Kim Fredrickson) My…
The Arizona Biomedical Research Commission awarded a $750,000 grant to researchers at University of Arizona (UA) College of Medicine for their innovative, plant-based model system — a “lung” growing on a leaf — to study pulmonary diseases that range from fibrosis to inflammation and infection. The three-year grant was given to Kenneth…
This is a difficult column to write because I have always enjoyed doing things for other people. However, since my diagnosis of idiopathic pulmonary fibrosis (IPF) in April 2016, I have had to learn the hard way that sometimes I need to put myself first. Lately, I am…
A new, wireless home monitoring program designed to collect data on lung function from patients with idiopathic pulmonary fibrosis (IPF) in real time showed good results and was approved by patients in a Dutch pilot study. Findings showed that spirometry measurements, which assess the amount and/or speed of air inhaled…
The patientMpower digital healthcare app now offers a “share” tool that allows patients with pulmonary fibrosis and like conditions to easily keep caregivers, friends, and family members aware of their progress, according to a blog on the company’s website. The interactive mobile platform — the basis of the…
There are many different memes, quotes, and metaphors out there about how different personalities make us all unique. I am sure you can think of people you love who are entirely different in their personalities, and how each of them is skilled or excels at different tasks. They…
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