Phase 2 Study in IPF Patients of Tralokinumab, Anti-IL-13 Antibody, Stopped for Lack of Efficacy

Reflecting on a Year Passed

It is safe to say that 2017 just wasn’t my year. It also seems that I can find solitude in saying that it wasn’t a great year in general, based on conversations with others. The hardest part of this year for me was the rapid progression of my…

What Do You Fear Most About Having Pulmonary Fibrosis?

https://www.youtube.com/watch?v=SYssJOKfZ_U Being diagnosed with pulmonary fibrosis can be terrifying and confusing and often takes a long time to come to terms with. In this video from EmpowHER, pulmonary fibrosis patient Dyane talks about what she most fears about the disease and how PF has impacted her life. MORE:…

First Patient Enrolls in Phase 2b Trial of INOpulse Nitric Oxide Delivery System

Bellerophon Therapeutics has enrolled the first pulmonary hypertension patient in a Phase 2b clinical trial of its INOpulse nitric oxide delivery system. The trial (NCT03267108) of the blood-vessel-widening device will cover people with pulmonary hypertension associated with interstitial lung disease, or PH-ILD. This includes people with idiopathic pulmonary fibrosis,…

Setting Goals for 2018

I feel hopeful and am looking forward to completing meaningful goals I’ve set for 2018. I’ve had times in the past when the idea of setting goals seemed ridiculous because of having such a serious condition. I realized that for me, this was part of grieving all that…

6 Resources to Help Patients Navigate Their Diagnosis

There’s a lot of literature out there that highlights strategies and tips for coping with a life-threatening illness diagnosis. The challenge is that most of this literature is written based on various theories from professionals including psychologists, chronic-illness specialists and doctors. This literature is very rarely written from a patient’s…

I Am Angry at My Body

Since being diagnosed with idiopathic pulmonary fibrosis (IPF) in early 2016, I have tried hard not to be angry or ask the rhetorical “Why me?” questions. This isn’t to say I haven’t had moments of weakness when I am upset about being diagnosed with a life-threatening illness as…

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