Idiopathic pulmonary fibrosis (IPF) can be a challenging disease for a care provider. To help provide support for IPF caregivers, Pulmonary Fibrosis MD has some useful resources. MORE: Pulmonary fibrosis caregivers encouraged to ‘take a breather’ 1. National Caregivers Library This site provides information…
Supplemental oxygen during exercise can improve pulmonary fibrosis patients’ breathing and workout capabilities, according to a report in the journal Respirology. A key feature of idiopathic pulmonary fibrosis (IPF) is higher levels of damaging oxygen oxidants, or substances that oxidize other substances. These compounds trigger tissue scarring known as…
Former New York Yankees baseball player Bernie Williams joined the Pulmonary Fibrosis Foundation (PFF) recently as they lobbied members of Congress to raise awareness about the impact idiopathic pulmonary fibrosis (IPF) has on patients and families. “My father passed away from idiopathic pulmonary fibrosis and I’m eager to raise awareness of the…
In this video from Boehringer Ingelheim Idiopathic Pulmonary Fibrosis, Professor Vincent Cottin and Professor Luca Richeldi discuss which biomarkers are reliable for the diagnosis of idiopathic pulmonary fibrosis (IPF) and can predict the disease’s progression. MORE: Sputum analysis could be an alternative…
About a year ago I put on my “big girl panties” and began the fight to get my oxygen provider to supply me with liquid oxygen. Up to this point, I’d been using an oxygen concentrator at home, and a portable oxygen concentrator away from home. I…
This animated video from Demystifying Medicine explains the complication of pulmonary fibrosis in scleroderma patients. It begins by sharing that 80 percent of Asian scleroderma patients suffer from some form of pulmonary disease and that it’s the leading cause…
As summer settles on most of Southern Ontario, Canada, it brings with it our first heat wave. Normally, I love the heat. Even last year, after I received my diagnosis of idiopathic pulmonary fibrosis (IPF), I didn’t mind the summer months. This year, with significantly reduced lung function,…
Australia’s national registry of patients with idiopathic pulmonary fibrosis (IPF) includes patients of diverse ages, disease severity and co-morbidities, and shows that baseline lung function and GAP (gender, age, physiology) stage are important prognostic markers for mortality. The study, “Baseline characteristics of idiopathic pulmonary fibrosis: analysis from the…
Being diagnosed with a chronic disease like pulmonary fibrosis can often lead to feelings of isolation and loneliness. Even if you have the full support of family and friends, you may feel that they don’t really understand what you’re going through physically and emotionally. MORE: Six pulmonary fibrosis complications Finding support is a…
New York Yankees legend Bernie Williams is collaborating with Boehringer Ingelheim to raise awareness of idiopathic pulmonary fibrosis (IPF), a disease that took the life of his father, Barnabé Williams, in 2001. Williams will participate in the Sin Aliento campaign on Father’s Day, June 18, to encourage those who may have IPF to…
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