miRagen to Present Results of Early Study on Inhaled Anti-fibrotic Therapy for IPF at ERS Congress

Since I received my IPF diagnosis about 16 months ago, there have been many times when things in my life have felt out of my control. For example, I neither can control how rapidly my disease is progressing, nor the physical limitations that I have due to…

Did you know that pulmonary fibrosis takes as many lives as breast cancer or prostate cancer? However, unlike breast and prostate cancer, there is no remission and treatment can only ease the symptoms. Elicia Shepard is one person trying to raise the profile of the disease and in this…

The Pulmonary Fibrosis Foundation is marking Pulmonary Fibrosis Awareness Month in September with a range of festivities across the United States. Some of the activities will allow patients, caregivers, and healthcare professionals to share their stories and knowledge with each other. The first event will be the inaugural walk…

Ten-year-old Abigayle Clarke from Alberta, Canada has received an award for her work raising awareness for the chronic lung disease, pulmonary fibrosis (PF). MORE: Nine steps for managing pulmonary fibrosis. According to an article on airdriecityview.ca, the youngster wanted to do something to help her…

If you’re a member of the PF community, you’re well aware of how little the general public knows about the disease. It’s important that we all work together to raise awareness. Awareness results in more fundraising efforts, which means more dollars, which means more research, and eventually, hopefully, that means…

Yesterday I had a difficult experience. It began when our electricity went out as it was turning dark. We didn’t know the cause of the power outage, or how long it would be out. We later learned that a tree in the neighborhood fell down and took…

Sometimes when people ask me, “What do you need” or “What can I do to help,” I feel like a broken record since my response is usually, “I don’t know.” I wish I did know what I need when I am in a poor emotional state, sobbing uncontrollably about…