Find Resources, Comfort and Support Online

Find Resources, Comfort and Support Online

Being diagnosed with pulmonary fibrosis is an overwhelming experience In a moment, our lives are changed forever when receiving this diagnosis. How do we absorb being diagnosed with a terminal illness? Where do we get answers to our many questions? How do we get support from others who…

Finding Medical Care for Pulmonary Fibrosis

The Pulmonary Fibrosis Foundation has a list of the all of the medical centers in the U.S. that have the expertise to treat patients with pulmonary fibrosis (PF), along with links to the centers’ websites so they can be contacted easily. The list can be searched by…

6 of the Best Apps for Chronic Illness Management

Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…

Measures of IPF Therapy Effectiveness Should Include Patients’ Views of Success, Researchers Argue

Clinical trials of idiopathic pulmonary fibrosis (IPF) therapies should include measures that reflect patients’ views of the success of treatments, Columbia University Medical Center researchers contend. In particular, the trials should add reduction in respiratory-related hospitalizations to their measurement tool kit, the team said. Patients’ views of treatment success could influence…

European Commission Approves New Esbriet Tablet for IPF Treatment

The European Commission (EC) recently approved a new formulation of Esbriet (pirfenidone) tablets for the treatment of mild to moderate idiopathic pulmonary fibrosis (IPF). According to Roche, Esbriet’s developer, the new tablet formulation will reduce the number of pills patients need to take throughout the day, offering patients an easier…

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