Raising Awareness of Pulmonary Fibrosis

Raising Awareness of Pulmonary Fibrosis

Did you know that pulmonary fibrosis takes as many lives as breast cancer or prostate cancer? However, unlike breast and prostate cancer, there is no remission and treatment can only ease the symptoms. Elicia Shepard is one person trying to raise the profile of the disease and in this…

Pulmonary Fibrosis Foundation Promoting Awareness Month with Range of Activities

The Pulmonary Fibrosis Foundation is marking Pulmonary Fibrosis Awareness Month in September with a range of festivities across the United States. Some of the activities will allow patients, caregivers, and healthcare professionals to share their stories and knowledge with each other. The first event will be the inaugural walk…

Coping When the Electricity Goes Out

Yesterday I had a difficult experience. It began when our electricity went out as it was turning dark. We didn’t know the cause of the power outage, or how long it would be out. We later learned that a tree in the neighborhood fell down and took…

What I Don’t Need as a Patient with IPF

Sometimes when people ask me, “What do you need” or “What can I do to help,” I feel like a broken record since my response is usually, “I don’t know.” I wish I did know what I need when I am in a poor emotional state, sobbing uncontrollably about…

7 Airway Clearance Techniques

According to the Cystic Fibrosis Foundation, there are seven major airway clearance techniques (ACTs) for patients with lung disease. Airway clearance is needed to help clear away mucus from the lungs to help prevent infections and to improve lung function. Children will need an adult to assist with ACTs, and…

Fibrosis-targeted Therapies Will Be Focus of Start-up Based on Discovery at Singapore Lab

Research into key drivers of fibrosis will be used by a Singapore-funded biotechnology start-up, Enleofen Bio, to possibly develop first-in-class therapeutics for pulmonary fibrosis (PF) and other fibrosis-related diseases. The intellectual property that came from the work performed at two Singapore institutions, Duke-NUS Medical School (Duke-NUS) and National Heart Centre…